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Practical management of behavioural impairment in motor neurone disease: MiNDToolkit feasibility study

Not Applicable
Completed
Conditions
Motor neurone disease with behavioural symptoms
Nervous System Diseases
Registration Number
ISRCTN15746123
Lead Sponsor
niversity of East Anglia
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
Completed
Sex
All
Target Recruitment
55
Inclusion Criteria

Participants will be family carers, relatives, or live-in professional carers of:
1. Patients with a diagnosis of MND with cognitive impairment or behavioural impairment, based on Strong et al. (2017) diagnostic criteria, or
2. Patients with a diagnosis of MND-FTD based on Strong et al. (2017) diagnostic criteria;
3. Carers will have at least 14 hours of contact with the person with MND per week and be willing to participate in research activities. Carers must be aged 18 years or over

Exclusion Criteria

Inability to read or communicate in English (with or without support)

Study & Design

Study Type
Interventional
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Secondary Outcome Measures
NameTimeMethod
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