Practical management of behavioural impairment in motor neurone disease: MiNDToolkit feasibility study
- Conditions
- Motor neurone disease with behavioural symptomsNervous System Diseases
- Registration Number
- ISRCTN15746123
- Lead Sponsor
- niversity of East Anglia
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- All
- Target Recruitment
- 55
Participants will be family carers, relatives, or live-in professional carers of:
1. Patients with a diagnosis of MND with cognitive impairment or behavioural impairment, based on Strong et al. (2017) diagnostic criteria, or
2. Patients with a diagnosis of MND-FTD based on Strong et al. (2017) diagnostic criteria;
3. Carers will have at least 14 hours of contact with the person with MND per week and be willing to participate in research activities. Carers must be aged 18 years or over
Inability to read or communicate in English (with or without support)
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method