Clarification of the care situation of patients with Fabry's disease by general practitioners/family doctors or general internists
- Conditions
- E75.2Other sphingolipidosis
- Registration Number
- DRKS00022897
- Lead Sponsor
- Klinik für angeborene Herzfehler und Kinderkardiologie, Deutsches Herzzentrum München
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending
- Sex
- All
- Target Recruitment
- 200
Inclusion Criteria
The study will include adult patients with Fabry's disease and their general practitioners.
Exclusion Criteria
Refusal to participate in the study, patients with cognitive impairments, patients with any language barriers that prevent them from understanding the study or failure to give consent
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method