Communication Bridge: Optimizing an Evidence-based Intervention for Individuals With Primary Progressive Aphasia
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- Primary Progressive Aphasia
- Sponsor
- University of Chicago
- Enrollment
- 12
- Locations
- 1
- Primary Endpoint
- Change in Communication Participation Person Centered Goals
- Status
- Active, Not Recruiting
- Last Updated
- 8 months ago
Overview
Brief Summary
The aim of this study is to evaluate the effectiveness and feasibility of evidence-based interventions in individuals living with mild to moderate primary progressive aphasia (PPA) that address communication-focused outcomes.
Detailed Description
The purpose of this study is to evaluate the effectiveness and feasibility of evidence-based interventions in individuals living with mild to moderate primary progressive aphasia (PPA) that address communication-focused outcomes. The study team aims to enhance the personal relevance and therapeutic impact of goal attainment scaling (GAS) while building self-efficacy within a self-management framework. This study will be a continuation of one of the largest non-pharmacologic intervention studies for individuals with PPA to date. It will add critical information regarding the effectiveness of telepractice interventions for communication disorders in adults with primary progressive aphasia specifically, and in dementia more broadly. The goal of this study is to maximize functional communication and life participation for the participants.
Investigators
Eligibility Criteria
Inclusion Criteria
- Not provided
Exclusion Criteria
- •A dementia diagnosis other than Primary Progressive Aphasia
- •Participation is co-enrolled in an outside speech language therapy program during the study course.
- •Communication partners will be excluded if they have a pre-existing communication impairment that would affect study participation (e.g., aphasia, dementia) Medical records will be requested and reviewed to determine eligibility
Outcomes
Primary Outcomes
Change in Communication Participation Person Centered Goals
Time Frame: Time Frame: 2 assessment time points through study completion, an average of 5 months, including change over time
Goal Attainment Scaling, a 7-point rating scale with -3 representing 'no longer participating' and +3 representing 'exceeded goal'. Higher scores indicate better progress in goal achievement.