NCT04874519已完成不适用
Fibrolamellar Carcinoma Global Dynamic Registry
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 12
- 试验地点
- 1
- 主要终点
- Build a Fibrolamellar Cancer/FLC registry
研究概览
简要总结
The purpose of this study is to collect information about people with fibrolamellar cancer (FLC). This study is a registry of people with FLC around the world. This study will involve collecting information about participants, their medical history and the regular medical care they receive for FLC. The study will not provide treatment for your cancer.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 13 Years 至 —（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Age 13 years or older.
- •Personal history of histologically proven fibrolamellar carcinoma (clinical or radiographical suspicion of FLC must be confirmed at MSK or an external hospital)
- •Participants must have access to electronic devices that meet the following minimum requirements:
- •Ability to connect to the internet
- •Capability of running modern internet browers (such as Google Chrome, Internet Explorer, Safari, or Mozilla Firefox).
- •Participants must have a google account
排除标准
- •Participants residing in the European Union (EU).
结局指标
主要结局
Build a Fibrolamellar Cancer/FLC registry
时间窗: 18 months
To build a registry of Fibrolamellar Cancer/FLC through patient reported information, that could be studied further in future studies.
次要结局
未报告次要终点
研究者
研究点 (1)
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