Rare intractable epilepsy syndrome registry
Not Applicable
Recruiting
- Conditions
- Rare epilepsy syndrome
- Registration Number
- JPRN-UMIN000015074
- Lead Sponsor
- HO Shizuoka Institute of Epilepsy and Neurological Disorders
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 500
Inclusion Criteria
Not provided
Exclusion Criteria
When attending physician considers the patient inappropriate to include in the study. When there is no causative disorder in case of focal epilepsy NOS, generalized epilepsy NOS or Undetermined epilepsy NOS. When the onset date of epilepsy is uncertain.
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Death, intellectual development, neuro-psychiatric status, comorbid condition, seizure type and seizure frequency, EEG and imaging findings, treatment, psychosocial condition. Evolutional changes of developmental status, seizure type and frequency, laboratory findings, social status as well as overall condition during the several years after onset.
- Secondary Outcome Measures
Name Time Method