Central Information Portal for rare diseases - Sub-project 2: Information Request from patients and their families.
- Conditions
- Rare diseases.
- Registration Number
- DRKS00006011
- Lead Sponsor
- niversität Hannover - Center for Health Economics Research
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Complete
- Sex
- All
- Target Recruitment
- 92
Inclusion Criteria
Patients and/or their families with a rare disease.
Exclusion Criteria
No rare disease.
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Determination of information needs and creation of ideal-typical information channels.
- Secondary Outcome Measures
Name Time Method