development patient data set by recording and maintenance a registry at the national level
Not Applicable
- Registration Number
- CTRI/2019/06/019661
- Lead Sponsor
- Indian Council of Medical Research
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- ot Yet Recruiting
- Sex
- Not specified
- Target Recruitment
- 0
Inclusion Criteria
Patient diagnosed with hemophilia A, B &C based on confirmatory factor assay will be included.
Patient diagnosed to have beta thalassemia, sickle cell syndrome, other hemoglobinopathies based on results of Cation exchange HPLC, capillary zone electrophoresis or molecular methods will be included in the study.
Exclusion Criteria
Patient will be not included if family member of the child or / care taker / patient do not give consent to participate in registry
Suspected cases without confirmed diagnosis
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Development of patient registry <br/ ><br>Future research purposeTimepoint: at Baseline, 3 months, 6 months and 12 months
- Secondary Outcome Measures
Name Time Method Development of patient registryTimepoint: future research projects