A study exploring the feasibility of delivering, evaluating, and implementing a new self-management programme for people with neuromuscular diseases

Not Applicable

Completed

• Conditions: euromuscular diseases; Nervous System Diseases

• Registration Number: ISRCTN14208138
• Lead Sponsor: niversity College London

Brief Summary

2023 Protocol article in https://pubmed.ncbi.nlm.nih.gov/36624548/ (added 10/01/2023)

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2021-08-18
• Study Completion: 2022-10-30
• Last Update Posted: 30 October 2023

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 60

Inclusion Criteria

1. New referral to the centre for neuromuscular diseases or any patient who is within 4 weeks of commencing treatment
2. Clinical diagnosis of neuromuscular disease (i.e a disease affecting either the anterior horn cell, peripheral nerves, neuromuscular junction or muscle tissue) from a consultant neurologist at the centre for neuromuscular diseases
3. Ability to follow a two-stage command
4. Over 18 years old

Exclusion Criteria

1. Patients aged <18 years
2. Patients that do not attend clinics at Queen Square Centre for Neuromuscular Diseases or University College London Hospital
3. Patients that do not have the capacity to provide informed consent
4. Patients have competing comorbidities influencing their rehabilitation, e.g. malignant cancer
5. Patients have significant issues with their readiness to participate as judged by the clinical team, e.g. illness of a carer
6. Do not require multidisciplinary rehabilitation
7. Hearing and visual impairments precluding their ability to fully participate in NM Bridges

Study & Design

• Study Type: Interventional
• Study Design: Not specified