Quality of care in patients with Parkinson's syndromes in the Rhine-Neckar metropolitan region - A cross-sectional study from the perspective of patients and relatives

• Conditions: G20; Parkinson disease

• Registration Number: DRKS00032733
• Lead Sponsor: SRH-Kurpfalzkrankenhaus Heidelberg

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2023-09-26
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Complete
• Sex: All
• Target Recruitment: 135

Inclusion Criteria

Patients with a clinical diagnosis of idiopathic Parkinson's disease
- Good knowledge of the German language to answer the questionnaires
- Able and willing to give consent

Exclusion Criteria

- Another cognition-impairing disease present
- Refusal or inability to participate in the study
- Other difficulties regarding understanding and communicating that hinder answering the questionnaire

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
The objectives of the study are to record the health status (WHODAS 2.0), the disease-specific quality of life (PDQ-39) and the utilisation of medical and non-medical healthcare services (FIMA). The survey takes place at a single point in time (explorative cross-sectional study). The survey extends over a period of 6 to 8 weeks.

Secondary Outcome Measures

Name	Time	Method
Another aim of the study is to survey the Caregiver Burden (PDCB) of relatives to IPD patients. The relatives are interviewed during the same period (at the same time as the patients).