A program strengthening the identification and support for young children with neurodevelopmental disabilities in line with Rastriya Bal Swathya Karyakram (RBSK) with the help of healthcare workers in South-east District of Delhi and North Goa District of Goa.

Not Applicable

• Conditions: Health Condition 1: F01-F99- Mental, Behavioral and Neurodevelopmental disorders

• Registration Number: CTRI/2024/06/068938
• Lead Sponsor: The University of Manchester

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Last Update Posted: 24 June 2024

Recruitment & Eligibility

• Status: ot Yet Recruiting
• Sex: Not specified
• Target Recruitment: 0

Inclusion Criteria

Criteria are depending on the Workstream of the project:

1) For formative work for community engagement tool development: Non-specialist providers and caregivers of children aged 2-9 years who are fluent in the local language i.e. Hindi, Konkani or Marathi;

2) Detection: All families residing in the study geography with children aged 18 months to 9 years.

3) Interventions: Children detected with NDDs/Autism between the age group of 2-9 years within the study geography.

4) Community engagement and involvement:

• Persons (18 and older) who are caregivers to an individual living with autism or intellectual disability. Or

• Persons (18 and older) who are living with autism spectrum disorder (self-advocates) who are able to communicate with or

without communication aids such as writing through tablets or laptops, or using alternative augmentative communication

devices as a speech-generating device. Or

• Non-specialist health workers who are involved in the delivery of the PASS Plus intervention in Delhi or in Goa, Or

• Specialist health workers for autism and intellectual disability (clinicians, paediatric health providers, occupational

therapists).

Exclusion Criteria

1) Children residing outside the study sites

2) Children less than 18 months or more than 9 years for detection.

3) Children less than 2 years for or more than 9 years for intervention.

4) Children having uncontrolled seizures in the last 6 months

5) Children with significant hearing/ visual problem

6) Children with any other significant genetic, neurodevelopmental or physical disability

7) Primary caregiver/ parent having significant hearing/ visual problem

8) Primary caregiver having a severe learning disability or current severe psychiatric disorder

Study & Design

• Study Type: Interventional
• Study Design: Not specified