Quality of life and participation in social life with special regard to cognitive function of patients who experienced an Arteriovenous Malformation during childhood. A long-term follow-up
- Conditions
- Q28.2Arteriovenous malformation of cerebral vessels
- Registration Number
- DRKS00017594
- Lead Sponsor
- Klinikum der Johann Wolfgang Goethe-Universität Frankfurt am Main
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending
- Sex
- All
- Target Recruitment
- 30
Inclusion Criteria
Arteriovenous Malformation during childhood
Exclusion Criteria
no Arteriovenous Malformation during Childhood
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method <br>Main question: Patients who have had a bleeding in childhood recover very well in long term follow-up and compensate neurological deficits very well.<br>Younger children recover faster and more adequately than young adults<br><br>Target sizes<br><br>Main target: clinical outcome using Quality of Life Scoe (QLS) I.a. and the Neuropsychological Screening Test (NST)
- Secondary Outcome Measures
Name Time Method <br>Adverse question: The social quality of life is significantly influenced by the course of the disease. Patients with incidental AVM serve as a control group.<br>Secondary objective: to determine prognostic factors