My child has cancer: The typology of psychological burden and its psychometric identification in parents of adolescent and young adult cancer patients
- Conditions
- psychological distressC81-C96Malignant neoplasms, stated or presumed to be primary, of lymphoid, haematopoietic and related tissue
- Registration Number
- DRKS00014976
- Lead Sponsor
- niversitätsklinikum Magdeburg, Zentrum für Innere Medizin, Klinik für Hämatologie und Onkologie
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Complete
- Sex
- All
- Target Recruitment
- 146
1) parents of AYA patients with hematologic malignant neoplasms who participated in the intervention group of the AYA-PARENTS study (inclusion criteria: a. acute / chronic hematologic malignant disease (ICD-10-C-diagnoses) AND / OR b. ambulatory / stationary treatment c. ECOG performance status = 2 d. AYA patients age 18-40 years e. sufficient command of the German language f. sufficient cognitive ability to understand diagnosis and treatment g. written and oral information to the intervention study h. written consent 2) participation at t0 (basis documentation before randomization) and t1 (baseline measurement with first questionnaires) of the AYA-PARENTS study 3) participation at least at one intervention session of the AYA-PARENTS study
none, if included in AYA-PARENTS
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Retrospective determination of parental exposure profiles using qualitative evaluation methods (qualitative content analysis, grounded theory, ideal type formation)
- Secondary Outcome Measures
Name Time Method