ISRCTN53323164
Active, not recruiting
未知
Integrating specialist palliative care to improve care and reduce suffering: cystic fibrosis
Overview
- Phase
- 未知
- Intervention
- Not specified
- Conditions
- Cystic fibrosis in adults
- Sponsor
- Emory University
- Enrollment
- 264
- Status
- Active, not recruiting
- Last Updated
- 3 years ago
Overview
Brief Summary
2022 Protocol article in https://pubmed.ncbi.nlm.nih.gov/36126995/ (added 27/09/2022)
Investigators
Eligibility Criteria
Inclusion Criteria
- •1\. English\-speaking
- •2\. Age \=18 years
- •3\. Palliative needs, as indicated by the following criteria:
- •3\.1\. \=1 moderate or severe symptom (captured by the Integrated Palliative Outcomes Scale \[IPOS]); OR
- •3\.2\. Reduced QoL (as captured by the IPOS); OR
- •3\.3\. \=2 hospitalizations in the preceding year
Exclusion Criteria
- •1\. Post lung transplant
- •2\. Patient does not receive primary CF care from the study site or intends to transfer primary CF care elsewhere over the next year
- •3\. Received outpatient specialty palliative care within the past 12 months
- •4\. Lack of reliable telephone or internet access
- •5\. Active suicidal ideation
Outcomes
Primary Outcomes
Not specified
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