IMproving FItness in NEuromuscular diseases
Recruiting
- Conditions
- Coaching, Motivational Interviewing, Aerobic exercise, Exercise therapy, Quality of life, Polio, Postpoliomyelitis syndrome, Charcot-Marie-Tooth, Neuromuscular diseases
- Registration Number
- NL-OMON20538
- Lead Sponsor
- Amsterdam UMC, University of Amsterdam, Department of Rehabilitation, Amsterdam Movement Sciences, the Netherlands.
- Brief Summary
/A
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- Not specified
- Target Recruitment
- 90
Inclusion Criteria
Prior paralytic poliomyelitis (confirmed by signs of residual weakness and atrophy of muscles on neuromuscular examination, and with EMG) or diagnosis PPS (according to the March of Dimes criteria), Charcot-Marie-Tooth (confirmed by DNA testing or polyneuropathy compatible with CMT and positive family history), or other slowly progressive NMD (with no effective drug therapy).
- Presence of a question for help indicative of impaired physical fitness or physical inactivity.
Exclusion Criteria
- Contraindication for being physically active.
- Unable to follow verbal or written instructions.
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Physical fitness (peak oxygen uptake)
- Secondary Outcome Measures
Name Time Method - Daily activity<br /><br>- Health-related quality of life<br /><br>- Perceived physical functioning<br /><br>- Muscle function<br /><br>- Markers of metabolic syndrome<br /><br>- Self-efficacy<br /><br>- Physical capacity