Optimising palliative care for older people in community settings: development and evaluation of a new short term integrated service (phases 1b and 2)

King's College London (UK)0 sites50 target enrollmentJanuary 16, 2014

Overview

Phase: Phase 1
Intervention: Not specified
Conditions: Not specified
Sponsor: King's College London (UK)
Enrollment: 50
Status: Completed
Last Updated: 4 years ago

Overview Investigators Eligibility Criteria Outcomes Similar Trials

Overview

Brief Summary

2021 results in https://pubmed.ncbi.nlm.nih.gov/34146843/ (added 21/06/2021)

Registry

who.int

Start Date

January 16, 2014

End Date

May 6, 2016

Last Updated

4 years ago

Study Type

Interventional

Sex

All

Investigators

Sponsor

King's College London (UK)

Eligibility Criteria

Inclusion Criteria

•1\. Phase 1b: focus groups \- Older adults living with frailty using one of the participating community groups or residing in the participating care home; or carers of older adults. Carers are either informal carers e.g. family member or a carer working as a volunteer for one of the participating charitable organisation supporting older people in community settings. Adults with capacity to give informed consent and communicate in English.
•2\. Stakeholder consultation participants comprise: service providers, commissioners and voluntary sector representatives from the study site. The purposive selection on the participants is based on:
•The services providers are health or social care practitioners providing community based services including: specialist palliative care, general practice, community nursing, end of life care facilitators, dementia services and social care.
•3\. The practitioners provide services in the locality of Sussex Community NHS Trust.
•4\. The commissioners are leads for end of life care services and are identified from the Care Commissioning Groups in the study site.
•5\. Voluntary sector representatives are local individuals representing local/national organisations supporting/advocating for older people.
•Phase 2: Adults aged 75 years over residing in the study site at home or in a care home (with or without nursing) severely affected by non\-malignant advanced illness and/ frailty with or without dementia and not using specialist palliative care. Severely affected encompasses one or more unresolved symptoms, psychosocial concerns, EoL issues, progressive illness, complex needs or Gold Standards Framework (GSF) prognostication index for frailty and dementia. Participants are registered with one of the four GP practices participating in the study. Participation will be offered to older people with or without carers. The inclusion criteria are broad as uncertainty surrounds when a frail older person may most benefit from palliative care. The findings from phases 1a and 1b will further develop and refine the inclusion criteria.