Exploring the impact on patients with lupus and related autoimmune diseases of peer support, relationships with clinicians and COVID-19 changes to care
- Conditions
- upus and other related SARDs/CTDs (systemic autoimmune rheumatic diseases/connective tissue diseases)Skin and Connective Tissue DiseasesLupus erythematosus
- Registration Number
- ISRCTN14966097
- Lead Sponsor
- niversity of Cambridge
- Brief Summary
2022 Results article in https://pubmed.ncbi.nlm.nih.gov/34995345/ (added 10/01/2022) 2020 Results article in https://pubmed.ncbi.nlm.nih.gov/33604501/ (added 28/03/2023) 2020 Results article in https://pubmed.ncbi.nlm.nih.gov/34698822/ (added 28/03/2023) 2021 Results article in https://pubmed.ncbi.nlm.nih.gov/33728396/ (added 28/03/2023)
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- All
- Target Recruitment
- 139
1. Participants with a self-verified diagnosis of SLE, UCTD, Sjögren’s syndrome, discoid/cutaneous lupus or MCTD/overlap disease
2. Resident in the UK
3. Participants aged 18 or over
Patients with significant cognitive impairment and unable to undertake informed consent
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method