Exploring the needs and requirements from Morbus Parkinson patients’ and their informal caregivers as a basis for the development of the patient school.
- Conditions
- G20Parkinson disease
- Registration Number
- DRKS00030090
- Lead Sponsor
- Deutschen Parkinson Vereinigung – Bundesverband – e.V. (dPV)
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Complete
- Sex
- All
- Target Recruitment
- 81
Patients:
Diagnosis of idiopathic Parkinson's disease
Ability to actively participate in a focus group interview (FGI) with other patients for a maximum of 120 minutes (operationalized through self-assessment)
German as mother tongue or very good knowledge of German
Unrestricted or adequately corrected vision and hearing
legal age
Relatives:
Interested people with at least one relative suffering from Parkinson's disease
Good or sufficiently corrected vision and hearing
German as mother tongue or very good knowledge of German
legal age
Patients and relatives:
Dementia symptoms (asked about the existence of a diagnosis)
Visual, hearing and speaking impairments that are not adequately corrected
Insufficient knowledge of German
Minority age
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Detailed understanding concerning the information needs and requirement of Parkinson's patients and their relatives
- Secondary Outcome Measures
Name Time Method not applicable