A pilot study to determine health concerns developed during COVID-19 pandemic in childhood cancer survivors and siblings of Tata Memorial Hospital, who are now grown up adults.
- Conditions
- Health Condition 1: B972- Coronavirus as the cause of diseases classified elsewhereHealth Condition 2: C00-D49- Neoplasms
- Registration Number
- CTRI/2020/11/029029
- Lead Sponsor
- Dr Maya Prasad
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Open to Recruitment
- Sex
- Not specified
- Target Recruitment
- 0
Inclusion Criteria for survivors:
1. Adult (more than 18 years) survivors of childhood cancer registered in After Completion of Treatment Clinic
2. Age more than 18 years at diagnosis, 5 years in remission
3. Familiarity with English to be able to understand and respond to the survey
4. Access to internet
Inclusion criteria for Siblings :
1. Sibling closest in age ( >18 years), and preferably same gender as the survivor
2. Aware of the past history of survivor and current health and psycho-social issues
3. Access to internet
4. Familiarity with English to be able to understand and respond to the survey
Exclusion criteria for Survivors:
1. Neuro-cognitive problems or blindness
Exclusion criteria for Siblings :
1. Neurocognitive problems or blindness
2. History of cancer diagnosis or treatment
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method To document the various health problems faced by adolescent and adult survivors of childhood cancer during the COVID pandemic.Timepoint: The survey will be administered once after establishing contact with the survivor/their sibling who has finished their treatment
- Secondary Outcome Measures
Name Time Method a.To assess the impact of the COVID pandemic on mental health and social/personal lives of the survivors <br/ ><br>b.To identify areas for specific health and psychosocial intervention <br/ ><br>c.To assess the access to health care during this periodTimepoint: The survey will be administered once after establishing contact with the survivor/their sibling who has finished their treatment