Rare Bleeding disorders in the Netherlands

Recruiting

• Conditions: VII; X; XI; XIII; 10064477; a2-antiplasmin or PAI-1. Rare bleeding disorders; deficiency of factor I; II; V; V&VIII

• Registration Number: NL-OMON47773
• Lead Sponsor: Radboud Universitair Medisch Centrum

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Last Update Posted: 28 February 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: Not specified
• Target Recruitment: 246

Inclusion Criteria

Rare bleeding disorder
Age 1-99

Exclusion Criteria

No informed consent
Residency outside of the Netherlands

Study & Design

• Study Type: Observational invasive
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>Description of the clinical phenotype, laboratory phenotype, genotype and<br /><br>quality of life of patients with rare bleeding disorders</p><br>

Secondary Outcome Measures

Name	Time	Method
<p>not applicable</p><br>