NCT02769780已完成不适用
A Web-based Observational Study of Patient-reported Outcomes in Adults With Narcolepsy
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 1,500
- 试验地点
- 1
- 主要终点
- Descriptive epidemiology of type 1 and type 2 narcolepsy
研究概览
简要总结
Nexus is a collaboration between academic institutions, advocacy and industry to answer important questions about narcolepsy. It is a web-based observational study of patient-reported outcomes in adult patients with narcolepsy, with follow-up every six months.
Nexus website: www.narcolepsyregistry.com
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •18 years or older
- •Diagnosed with narcolepsy by a doctor
排除标准
- 未提供
结局指标
主要结局
Descriptive epidemiology of type 1 and type 2 narcolepsy
时间窗: Participants complete a survey every 6 months for 3 years after enrollment
Assessments include disease/diagnosis characteristics, disease/symptom characteristics, health-related quality of life (HRQoL), functioning, work productivity, resource utilization, and comorbidity burden at the time of enrollment and their progression through the course of the study
次要结局
- Medication utilization and treatment outcomes for type 1 and type 2 narcolepsy(Participants complete a survey every 6 months for 3 years after enrollment)
研究者
研究点 (1)
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