Results of a program involving adequacy of wheelchair posture in the quality of life, satisfaction and activities of caregivers of children with cerebral palsy

Not Applicable

• Conditions: Cerebral palsy; family caregivers at risk of low back pain; Psychological stress; social problems; C10.228.140.140.254; M01.085; C23.888.592.612.107.400; F01.145.126.990; I01.880.735

• Registration Number: RBR-22kxyc
• Lead Sponsor: niversidade Federal de São Carlos

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2018-05-22
• Last Update Posted: 29 May 2023

Recruitment & Eligibility

• Status: Data analysis completed
• Sex: Not specified
• Target Recruitment: Not specified

Inclusion Criteria

Caregivers who accompany adolescents with clinical diagnosis of cerebral palsy for at least one year and who do not receive remuneration for care; adolescents who are aged between 10 and 19 years and who use wheelchairs in a home environment for at least one year.

Exclusion Criteria

Adolescents with cerebral palsy who have already undergone postural adjustments through the use of the digitized system; who are able to use the wheelchair independently, requiring no direct assistance from a caregiver.

Study & Design

• Study Type: Intervention
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
The home intervention program based on the model focused on the family established for both cases showed potential for improving the perception of quality of life, satisfaction with the technology (wheelchair) and occupations of informal caregivers of adolescents with cerebral palsy.The average quality of life of the caregivers obtained through the WHOQOL-Bref increased from 83 points to 88 points. The average for satisfaction with the technology obtained through QUEST was 42 points to 46.5. From the COPM, it was observed an improvement in the perception of occupational performance, going from an average of 15 points to 17.5, as well as satisfaction with occupations, from 14.5 to 15 points.

Secondary Outcome Measures

Name	Time	Method
<br>In the fallow-up it was possible to observe that the scores related to the occupations of the caregivers (perception of performance and satisfaction) increased. The averages of the quality of life and wheelchair satisfaction scores presented a decrease in this last phase. According to the COPM, the average perception of performance went from 17.5 points to 21 points; the average satisfaction with occupations increased from 15 points to 18.5. For QUEST, satisfaction with technology decreased from 46.5 to 45.5. In the data obtained from the WHOQOL-Bref, the scores went from 88 points to 77.5.