Evaluation of Arts-Based Storytelling Program in Adolescents With Diabetes
试验速览
- 阶段
- 不适用
- 状态
- 进行中（未招募）
- 入组人数
- 10
- 试验地点
- 1
- 主要终点
- Participant retention and attendance
研究概览
简要总结
The goal of this clinical trial is to evaluate whether an arts-based storytelling and narrative medicine workshop series can improve social connection, illness identity, and psychological well-being in adolescents and young adults with chronic illness, specifically diabetes.
The main questions it aims to answer are:
- Does participation in a narrative-based storytelling workshop improve social connectedness and peer support among adolescents and young adults with diabetes?
- Does engagement in creative arts and reflective storytelling support identity formation, self-expression, and emotional well-being in this population?
Participants will be 16-25 years old and recruited through the UCSF Pediatric Diabetes Clinic. Individuals must be able to participate in group workshops and complete surveys and interviews related to the study.
Participants will:
- Attend eight weekly workshops centered on storytelling, reflection, and creative expression
- Engage in narrative medicine activities, including writing, storytelling, drawing, and facilitated reflection
- Participate in group discussions focused on personal experiences with chronic illness
- Complete pre- and post-intervention surveys assessing psychosocial outcomes such as social connectedness, illness identity, self-concept, and mental well-being
- Participate in interviews and reflective exercises about their experiences in the program
This study aims to explore the role of narrative medicine and arts-based interventions in supporting adolescents and young adults with chronic illness and assess their potential benefits as a supplement to standard medical care.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 16 Years 至 25 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Participants must be patients at the UCSF Pediatric Diabetes Clinic
- •Participants must have a self-reported diagnosis of diabetes
- •Participants must be between 16-25 years old
- •The participant and/or caregiver(s) must be English-speaking
排除标准
- •Participants unable to attend the first session
研究组 & 干预措施
Arts-Based Storytelling Workshop Series
Participants in this study will take part in an eight-week arts-based storytelling workshop series designed to promote social connection, self-expression, illness identity development, and psychological well-being in adolescents and young adults with diabetes. Workshops will be conducted weekly and will include: -Close engagement with written, visual, or artistic materials centered on themes such as identity, resilience, relationships, uncertainty, growth, and coping with chronic disease - Facilitated group discussions and sharing intended to foster peer support, connection, emotional processing, and self-expression - Creative arts exercises, including writing, storytelling, drawing, or other forms of creative expression in response to structured prompts
干预措施: Arts-Based Storytelling Workshop Series (Behavioral)
结局指标
主要结局
Participant retention and attendance
时间窗: Throughout intervention (Weeks 1-8), assessed immediately post-intervention (Week 8)
Feasibility will be assessed by tracking the number of participants who attend each of the 8 weekly sessions, including overall completion of the program.
Participant satisfaction
时间窗: Immediately post-intervention (Week 8)
Acceptability will be assessed using post-intervention satisfaction questionnaires with 5-point Likert-scale items and semi-structured individual interviews. Measures will evaluate perceived relevance of workshop content, usefulness of creative prompts, quality of group discussion, and facilitation experience. Scale title: Intervention Satisfaction Questionnaire (ISQ) Minimum value: 1 (Strongly Disagree) Maximum value: 5 (Strongly Agree) Interpretation: Higher scores indicate greater satisfaction with the intervention.
次要结局
- Qualitative themes from interviews and group reflections(Pre-intervention (Week 0) and post-intervention (Week 8))
- Illness identity(Pre-intervention (Week 0) and post-intervention (Week 8))
- Social connectedness(Pre-intervention (Week 0) and post-intervention (Week 8))
- Self-reported well-being(Pre-intervention (Week 0) and post-intervention (Week 8))
- Self-esteem(Pre-intervention (Week 0) and post-intervention (Week 8))