Perspectives on the Adolescent, Young Adult, and Adult Experience as Donors for Their Parent Undergoing Haploidentical Bone Marrow Transplants

Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins0 sites16 target enrollmentDecember 6, 2016

ConditionsBone Marrow Transplant

Overview

Phase: Not Applicable
Intervention: Not specified
Conditions: Bone Marrow Transplant
Sponsor: Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins
Enrollment: 16
Primary Endpoint: Themes influencing donors' decision-making as assessed by words used during interview responses
Status: Completed
Last Updated: 7 years ago

Overview Investigators Eligibility Criteria Outcomes Similar Trials

Overview

Brief Summary

The purpose of this pilot study is to explore the role of family function on decision-making for bone marrow donors who donated for their parent, and to assess the unique supportive care needs of these participants. Semi-structured interviews were conducted with participants to identify overarching themes of the donation experience.

Registry

clinicaltrials.gov

Start Date

December 6, 2016

End Date

June 29, 2017

Last Updated

7 years ago

Study Type

Observational

Sex

All

Investigators

Sponsor

Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins

Responsible Party

Sponsor

Eligibility Criteria

Inclusion Criteria

•Donated bone marrow or peripheral blood stem cells for their parent in the past 1-6 months
•Willing to participate in mandatory audio recorded telephone interview
•Able to participate in interview without assistance
•Must be English speaking
•Transplant recipient (parent) must be living

Exclusion Criteria

•Unable to provide oral consent for participation (for minors- unable to obtain parental consent and/or oral assent from child for participation)

Outcomes

Primary Outcomes

Themes influencing donors' decision-making as assessed by words used during interview responses

Time Frame: Day 1

Words/terms are extracted from interviewer responses and associated to key themes that influence participant's decision-making process. A codebook is used to reference these words/terms