ISRCTN12557586进行中（未招募）未知
Surgical Paediatric congEnital Anomalies Registry with Long term follow-up (Surgical-PEARL study)
niversity of Bristol0 个研究点目标入组 2,500 人开始时间: 2022年4月28日最近更新:
试验速览
- 阶段
- 未知
- 状态
- 进行中（未招募）
- 发起方
- 入组人数
- 2,500
研究概览
简要总结
2022 Protocol article in https://pubmed.ncbi.nlm.nih.gov/36600324/ (added 06/01/2023)
研究设计
- 研究类型
- Observational
入排标准
- 性别
- All
入选标准
- •Patients must be:
- •1. Fetus (2nd and 3rd trimester) or aged between 0 months and 5 years of age
- •2. Diagnosed with CAPRS
- •The person giving consent must:
- •3. Have parental responsibility for the participant
- •Biological mothers and fathers:
- •4. Have a biological child enrolled in PEARL
- •5. Have capacity to consent
排除标准
- •1. Unable to give informed consent and/or assent
- •2. Main residence is outside the UK
研究者
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