Effectiveness of Hemophilia Education Program) on quality of life and clinical outcomes of children and young people with hemophilia.
Not Applicable
- Conditions
- Health Condition 1: D66- Hereditary factor VIII deficiencyHealth Condition 2: null- Quality of life, clinical outcomes, Knowledge of patients with hemophilia
- Registration Number
- CTRI/2018/02/011729
- Lead Sponsor
- Manipal hemophilia society
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Closed to Recruitment of Participants
- Sex
- Not specified
- Target Recruitment
- 0
Inclusion Criteria
Patients with moderate and severe hemophilia
Exclusion Criteria
patients with mild hemophilia
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Health related quality of lifeTimepoint: baseline, 6 months, 12 months,18 months
- Secondary Outcome Measures
Name Time Method clinical outcomes-hemophilia joint health scoreTimepoint: 0 months,18 months;knowledge on hemophiliaTimepoint: 0 months, 6 months,12 months,18 months;perceived barriers related to hemophilia treatmentTimepoint: Baseline