Prospective Ascertainment for Late Effects Among Survivors of Cancer, Tumor, or a Related Illness
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- Pediatric or Young Adult Cancer Survivors
- Sponsor
- Memorial Sloan Kettering Cancer Center
- Enrollment
- 1068
- Locations
- 1
- Primary Endpoint
- establish a registry of DNA
- Status
- Completed
- Last Updated
- last year
Overview
Brief Summary
The purpose of this study is to establish a registry of survivors of cancer, tumor, or a related illness.
Investigators
Eligibility Criteria
Inclusion Criteria
- •English speaking
- •A personal history of cancer tumor, or a related illness
- •Followed in the the Adult Long Term Follow Up Program, Pediatric Long Term Follow Up Program, or Lymphoma Service at MSKCC
Exclusion Criteria
- •Evidence of active progression of disease or recurrence
- •Neurocognitive deficits that impair ability to give informed consent.
Outcomes
Primary Outcomes
establish a registry of DNA
Time Frame: 4 years
For the purpose of facilitating future genetic laboratory investigations of late effects among of survivors of cancer, tumors, or a related illness. Patients in the ALTFU Program are followed for secondary malignant neoplasms and other adverse outcomes (so-called "late effects") including cardiomyopathy, pulmonary fibrosis, cardiac valvular pathology, osteoporosis, and others. The following data will be ascertained from each study participant: (1) family history information will be ascertained using the Family History Questionnaire (Appendix A); and (2) saliva or blood samples for genetic analysis.