HPDnet: The Future of Child and Adolescent Healthcare – Integrating Hospital Pediatric Departments into Health Networks in order to Improve Patient-Centered Care for Children with Kidney Disease

• Conditions: 00 - N08 Glomerular diseases; N10 - N16 Tubulointerstitial renal diseases; N17 - N19 Renal failure; N20 - N23 Urolithiasis; N25-N29 Other diseases of the kidney and ureter; N30 - N39 Other diseases of the urinary system; Q60 - Q64 Congenital malformations of the urinary system; Z90.5 Loss of kidney(s); Z94. 0 Condition following kidney transplantation; D59.3 Haemolytic uraemic syndrome

• Registration Number: DRKS00033967
• Lead Sponsor: Seminar für ABWL und Management im Gesundheitswesen der Wirtschafts- und Sozialwissenschaftlichen Fakultät der Universität zu Köln

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2024-03-26
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Enrolling by invitation
• Sex: All
• Target Recruitment: 396

Inclusion Criteria

Inpatient departments with specialization in pediatric care (department codes: 1000; 1004; 1005; 1006; 1007; 1009; 1011; 1012; 1014; 1028; 1050; 1051; 1090; 1091; 1093; 1096; 1100; 1136; 1190; 1300; 1500; 1513) and/or specialization in the diagnosis and treatment of pediatric kidney diseases (VK 04)
- Treatment of >= 10 cases from study-relevant ICDs per year

Exclusion Criteria

- Inpatient department without pediatric specialization (according to department code) and/or care focus on diagnostics and therapy of pediatric kidney diseases (VK 04)
- Treatment of <10 cases from study-relevant ICDs per year

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Direction (proportion of admissions and referrals per department) and volume (relative and absolute number of pediatric-nephrological cases) of patient flows in regional care networks

Secondary Outcome Measures

Name	Time	Method
WP1: Complexity (number of care providers involved), intensity (contacts with a care provider) and dynamics (time periods with extremely low/high intensity and complexity) of patient-provider relationships for the Cologne care region (secondary data: CoRe-Net)<br><br>WP2: Organizational care indicators of pediatric-nephrological cases (number of cases) and care expertise (number and degree of specialization of pediatric hospital departments) (secondary data: structured quality reports) <br><br>WP3: Relational coordination and cooperation factors for the care of pediatric-nephrological cases of healthcare providers (survey) <br><br>WP4: Patient-centered care of nephrology-pediatric patients (interviews)