German Myasthenia gravis registry - research in treatment of patients with myasthenic syndromes in clinical practice

Recruiting

• Conditions: G70.0; G70.2; G73.1; Myasthenia gravis; Congenital and developmental myasthenia; Lambert-Eaton syndrome

• Registration Number: DRKS00024099
• Lead Sponsor: Deutsche Myasthenie Gesellschaft e.V.

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2021-02-02
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 2000

Inclusion Criteria

ability to give consent
- diagnosis of MG, LEMS, CMS

Exclusion Criteria

Revocation of participation in the study

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
The primary goal is to improve the quality of care in terms of quality assurance.<br>Relevant data for the treatment of myasthenia patients should be recorded and evaluated on the web. These data are to be used to research the care of patients with myasthenic syndromes and in particular to identify modifiable, previously unknown influencing factors on the long-term course in order to improve the treatment of the patients and thus also the long-term outcome of patients with myasthenia gravis (MG) To improve Lambert-Eaton Myasthenic Syndrome (LEMS) and Congenital Myasthenic Syndrome (CMS).