Dementia Person-Aligned Care Team (DPACT)

Devon Partnership NHS Trust0 sites110 target enrollmentSeptember 23, 2019

ConditionsDementia Mental and Behavioural Disorders Unspecified dementia

Overview

Phase: 未知
Intervention: Not specified
Conditions: Dementia
Sponsor: Devon Partnership NHS Trust
Enrollment: 110
Status: Completed
Last Updated: 2 years ago

Overview Investigators Eligibility Criteria Outcomes Similar Trials

Overview

Brief Summary

No summary available.

Registry

who.int

Start Date

September 23, 2019

End Date

June 1, 2022

Last Updated

2 years ago

Study Type

Interventional

Sex

All

Investigators

Sponsor

Devon Partnership NHS Trust

Eligibility Criteria

Inclusion Criteria

•People living with dementia† (people with a formal diagnosis of dementia regardless of specific type) and significant cognitive problems which could indicate dementia and their carer‡, resident within the local authority boundary to be served. The programme also aims to investigate ways in which people with dementia without a carer can be included.
•†Dementia is a broad term used to describe a range of neurodegenerative disorders which may include but will not be limited to: Alzheimer's disease (AD); Late Onset Alzheimer’s disease (LOAD); Early Onset Alzheimer’s disease (EOAD); Vascular dementia (VAD); Mixed dementia (AD with VAD); Dementia with Lewy bodies (LBD); Frontotemporal dementia (FTD); Parkinson’s disease dementia (PDD).
•‡Carers in this context are defined as the primary person who feels responsible for, and supports, the person with dementia”. Inclusion criteria need to be constructed that do not exclude participants that are representative of the target population and stand to benefit most from the intervention. We need to avoid waste of resources and unnecessary burden on patients by not including those at a disease stage so mild that it precludes benefit. Inclusion criteria will require careful consideration from practical perspectives. Roughly one third of people with dementia live alone and while some may still have an active and engaged carer, it is likely that assistance received is more variable than in dyads where the carer is cohabitating. This may also influence engagement with a Dementia Support Worker intervention. There is also a higher trial dropout rate associated with people with dementia with non\-spousal carers.
•While the intention is to include such individuals in the trial, it will be necessary to explore the mechanisms of the intervention in the context of variable carer capacity and care\-delivery; the proxy reporting capacity of the carer will need to be considered with regard to valid outcome completion. This is one of the key aspects of the intervention that the Peer Research Group will be engaged with.