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Implementation of Metformin theraPy to Ease Decline of Kidney Function in Polycystic Kidney Disease (IMPEDE-PKD)

Phase 3
Recruiting
Conditions
Autosomal Dominant Polycystic Kidney Disease
Interventions
Other: Control
Registration Number
NCT04939935
Lead Sponsor
The University of Queensland
Brief Summary

This study will investigate if a medication (metformin) widely used in the treatment of diabetes could be re-purposed for the treatment of patients with a diagnosis of early stage ADPKD to slow the rate of kidney function decline, reducing morbidity and mortality and improving the quality of life for ADPKD patients.

Detailed Description

Autosomal Dominant Polycystic Kidney Disease (ADPKD) affects 12.5 million people worldwide and is the 4th leading cause of kidney failure. Cyst growth begins in childhood, and over decades leads to painful kidneys, hypertension and chronic kidney disease. ADPKD patients also have a high prevalence of anxiety, depression and poor quality of life. Despite this enormous burden, there is a lack of evidence for therapies and affordable, effective treatment options. To date, only one disease modifying therapy is licensed for use in ADPKD (tolvaptan), but it is limited by its restricted availability, side effects and high cost. Metformin, an inexpensive and familiar drug, has been shown in previous studies to target cyst-forming signals, thereby slowing the cyst growth rate. IMPEDE-PKD is an Australian-led global Phase III randomised controlled trial to investigate the effect of metformin on ADPKD disease progression. The study will recruit a total of 1,174 adult ADPKD patients from around the world (250 from Australia). The outcomes of this research will identify effective and targeted therapies for ADPKD that will slow kidney function decline, reduce the impact of the illness and likelihood of death, and improve the quality of life for ADPKD patients and families.

Recruitment & Eligibility

Status
RECRUITING
Sex
All
Target Recruitment
1174
Inclusion Criteria

To be eligible to participate in this trial, patients must satisfy all of the following inclusion criteria:

  1. Willing to participate and provide informed consent
  2. Aged 18-70 years
  3. Diagnosis of ADPKD based on radiological +/- genetic criteria as per Kidney Health Australia - Caring for Australians and New Zealanders with Kidney Impairment (KHA-CARI) Guidelines
  4. eGFR equal to or greater than 38 mL/min/1.73m2 and <90 mL/min/1.73m2

And have either:

5(a) One or more risk factors of progression from the following:

  • Bilateral kidney length equal to or greater than16.5 cm, or
  • Total Kidney Volume (TKV) equal to or greater than 750 mL or height-adjusted TKV (htTKV) equal to or greater than 600 mL/m2, or
  • Mayo class IC/D/E or Pro-PKD score equal to or greater than 6 OR 5(b) Evidence of Active progression
  • Decline in eGFR equal to or greater than 5 mL/min/1.73m2 in one year, or
  • Decline in eGFR equal to or greater than 3 mL/min/1.73m2 per year over five years or more. or
  • Increase in htTKV/TKV of equal to or greater than 5% per year on at least 2 measurements in the past year, excluding any initial eGFR effect over the initial 3 months of tolvaptan commencement (if applicable) Note: Tolvaptan therapy must have been in place for at least 6 months with stable dose for at least 3 months.
Exclusion Criteria
  1. Diabetes mellitus (as per American Diabetes Association definition), or other systemic conditions that may cause CKD independent of PKD (excluding hypertension)

  2. Uncontrolled hypertension (Systolic BP >160 mmHg and/or diastolic BP >100 mmHg after a period of rest)

  3. Clinically significant heart failure, including but not limited to New York Heart Association Class (NYHA) III or IV

  4. Non-polycystic liver disease, including but not limited to:

    1. Liver enzymes (ALT, AST or Total Bilirubin) >2 times the upper limit of normal, except when a diagnosis of Gilbert Syndrome exists and/or,
    2. Child-Pugh classification score equal to or greater than 5
  5. Any contraindication to metformin including abnormal liver function tests or untreated Vitamin B12 deficiency

  6. Currently taking metformin

  7. Pregnancy or breastfeeding, or planning to get pregnant in the next three years.

  8. Comorbidities with potential to contaminate trial outcomes, specifically active cancer, history of other solid organ transplantations, active chronic obstructive pulmonary disease (COPD), active inflammatory bowel disease, and the presence of stoma.

  9. History of dialysis.

Study & Design

Study Type
INTERVENTIONAL
Study Design
PARALLEL
Arm && Interventions
GroupInterventionDescription
InterventionMetformin XRParticipants randomised to the intervention group receive Metformin XR plus standard of care for 104 weeks. Dosage will depend on individual participant's level of tolerance to Metformin XR as well as their estimated glomerular filtration rate (eGFR). The dosage will be between 500-2000mg/day.
ControlControlParticipants randomised to the control group receive placebo plus standard of care for 104 weeks.
Primary Outcome Measures
NameTimeMethod
The change in estimated glomerular filtration rate (eGFR)Over 24 months

This will be measured using Chronic Kidney Disease Epidemiology Collaboration (CKD-EPI) formula at 104 weeks (24 months) from first dispensing date.

Secondary Outcome Measures
NameTimeMethod
ADPKD-related painOver 24 months

Mean change in the ADPKD Pain and Discomfort Scale (ADPKD-PDS) from baseline to end of study (dull kidney pain, sharp kidney pain and fullness/discomfort domain scores will be reported and analysed).

Presence of study-related eventsOver 24 months

The proportion of participants who experience a specific event related to the study treatment (sub-categorised as incidence of gastrointestinal symptoms, presence of lactic acidosis, deranged liver function tests, hypoglycaemia, anaemia and vitamin B12 deficiency) expressed as a rate per 100 person years

Health-related quality of lifeOver 24 months

This will measured using the EuroQual 5 Domain 5 Level (EQ-5D-5L) questionnaire

Gastrointestinal symptomsOver 24 months

This will be measured using the Gastrointestinal Symptom Rating Scale (GSRS). A score greater than 1.33 will signal the presence of patient-significant gastrointestinal symptomatology

Presence and category change of albuminuriaOver 24 months

The proportion of participants who experience albuminuria (excess albumin in the urine) during the trial period. Raw values will be recorded and albuminuria will be categorised as either A1 (\<3.39mg/mmol), A2 (3.39-33.9mg/mmol), or A3 \>33.9mh/mmol.

Change in medication dosage during the trialOver 24 months

The proportion of participants requiring a dosage increase or the introduction of a new anti-hypertensive agent during the treatment period.

Annualised slope of eGFR.Over 24 months

The mean rate of change in eGFR from baseline over 2 years, estimated using the Chronic Kidney Disease Epidemiology Collaboration (CKD-EPI) formula from the serum creatinine concentration analysed in the central laboratory.

Severity of change in eGFROver 24 months

The proportion of participants with a reduction from baseline in their eGFR of equal to or greater than 30%.

Kidney failureOver 24 months

The proportion of participants who experience kidney failure, defined as an eGFR \<15mL/min/1.73m2.

Composite outcomeOver 24 months

A composite outcome comprising a reduction from baseline eGFR of equal to or greater than 30%, kidney failure (defined as an eGFR \<15 millilitres/min/1.73m2), and all-cause mortality.

MortalityOver 24 months

The proportion of participants who die during the observation period, irrespective of the cause.

Changes in the urine albumin:creatinine ratioOver 24 months

The percentage change in the urine albumin:creatinine ratio for each participant

Healthcare utilisationOver 24 months

Incremental cost effectiveness ratios (ICERs) will be calculated based on the incremental costs and incremental health outcomes between intervention groups

Trial Locations

Locations (40)

Renal Research

🇦🇺

Gosford, New South Wales, Australia

Royal Prince Alfred Hospital

🇦🇺

Sydney, New South Wales, Australia

Royal North Shore Hospital

🇦🇺

Sydney, New South Wales, Australia

Westmead Hospital - Western Sydney Local Health District

🇦🇺

Sydney, New South Wales, Australia

Bundaberg Hospital

🇦🇺

Bundaberg, Queensland, Australia

Townsville University Hospital

🇦🇺

Douglas, Queensland, Australia

Royal Brisbane and Women's Hospital

🇦🇺

Herston, Queensland, Australia

Princess Alexandra Hospital

🇦🇺

Woolloongabba, Queensland, Australia

Royal Adelaide Hospital

🇦🇺

Adelaide, South Australia, Australia

Royal Melbourne Hospital

🇦🇺

Melbourne, Victoria, Australia

Austin Health

🇦🇺

Melbourne, Victoria, Australia

Monash Medical Centre

🇦🇺

Melbourne, Victoria, Australia

Sir Charles Gairdner Hospital

🇦🇺

Perth, Western Australia, Australia

Te Whatu Ora - Hauora a Toi Bay of Plenty

🇳🇿

Tauranga, Bay Of Plenty, New Zealand

Te Whatu Ora - Te Tai Tokerau

🇳🇿

Whangārei, Northland, New Zealand

Te Whatu Ora - Southern

🇳🇿

Dunedin, Otago, New Zealand

Te Whatu Ora - Taranaki

🇳🇿

New Plymouth, Taranaki, New Zealand

Royal Devon & Exeter Hospital

🇬🇧

Exeter, Devon, United Kingdom

Nottingham Renal Unit, Nottingham City Hospital

🇬🇧

Nottingham, East Midlands, United Kingdom

Raigmore Hospital

🇬🇧

Inverness, Inverness Shire, United Kingdom

Royal Preston Hospital

🇬🇧

Preston, Lancashire, United Kingdom

Salford Royal Hospital

🇬🇧

Salford, Lancashire, United Kingdom

Leicester General Hospital

🇬🇧

Leicester, Leicestershire, United Kingdom

St Helier Hospital

🇬🇧

Carshalton, London, United Kingdom

Aintree University Hospital

🇬🇧

Liverpool, Merseyside, United Kingdom

Norfolk and Norwich University Hospital

🇬🇧

Norwich, Norfolk, United Kingdom

Antrim Area Hospital

🇬🇧

Antrim, Northern Ireland, United Kingdom

Ulster Hospital

🇬🇧

Belfast, Northern Ireland, United Kingdom

Altnagelvin Hospital

🇬🇧

Londonderry, Northern Ireland, United Kingdom

Daisy Hill Hospital

🇬🇧

Newry, Northern Ireland, United Kingdom

Oxford Kidney Unit, Churchill Hospital,

🇬🇧

Oxford, Oxfordshire, United Kingdom

Doncaster Royal Infirmary

🇬🇧

Doncaster, South Yorkshire, United Kingdom

Sheffield Kidney Institute

🇬🇧

Sheffield, South Yorkshire, United Kingdom

Royal Stoke University Hospital

🇬🇧

Stoke-on-Trent, Staffordshire, United Kingdom

Freeman Hospital

🇬🇧

Newcastle upon Tyne, Tyne And Wear, United Kingdom

Queen Elizabeth Hospital Birmingham

🇬🇧

Birmingham, West Midlands, United Kingdom

Bradford Renal Unit, St Luke's Hospital

🇬🇧

Bradford, West Yorkshire, United Kingdom

The Royal London Hospital

🇬🇧

London, United Kingdom

Royal Free Hospital

🇬🇧

London, United Kingdom

King's College Hospital

🇬🇧

London, United Kingdom

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