Feasibility and impact of a physical activity and lifestyle program for Aboriginal families with Machado-Joseph disease living in the Top End of Australia
试验速览
- 阶段
- 未知
- 状态
- 已完成
- 入组人数
- 8
研究概览
简要总结
All participants completed the program, averaging five activity sessions per week, 66 minutes per session, of walking (63.5%), strengthening/balance-based activities (16%), cycling (11.4%) and activities of daily living, cultural and lifestyle activities (10.5%). Seven participants were assessed on all measures on three occasions: baseline, pre-program and post-program, while one participant could not complete post-program measures due to ceremonial responsibilities. All had significant improvements in mobility, steps taken and ataxia severity after the program. Quality of life and wellbeing was maintained and participants reported that they felt ‘strong on the inside and outside’ after completion of the program. Participants recommended implementation in four-week blocks and for the program to be shared internationally.
研究设计
- 研究类型
- Interventional
- 分配方式
- Non-randomised trial
- 主要目的
- Treatment
- 盲法
- Open (masking not used)
入排标准
- 年龄范围
- 18 Years 至 o limit（—）
- 性别
- All
入选标准
- •Criteria for inclusion of participants included a clinical or genetic diagnosis of MJD, aged 18 and over, identified as belonging to either Groote Eylandt or Ngukurr communities, and able to provide informed consent.
排除标准
- •Participants were excluded if they had additional health conditions that impacted their mobility (e.g. a neurological condition such as spinal cord injury; a vascular condition such as amputation or a moderate to severe cognitive, intellectual or mental disability) or if deemed medically unable to participate by their doctor.