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Folic Acid Clinical Trial: Follow up of Children (FACT 4 Child)

Completed
Conditions
Pre-Eclampsia
Executive Dysfunction
Autism Spectrum Disorder
Asthma
Emotional Problem
Behavioural Problem
Death
Interventions
Diagnostic Test: SRS 2, CBCL, BRIEF-P
Registration Number
NCT03269110
Lead Sponsor
Ottawa Hospital Research Institute
Brief Summary

FACT 4 Child is a follow up study of mothers who participated in the Folic Acid Clinical Trial (NCT01355159) and their children at 4-6 years of age to determine the effect of high dose folic acid supplementation on social impairments associated with Autism Spectrum Disorders (ASDs), and deficiencies in a range of executive function and emotional and behavioural problems in young children, and the risk of death.

Detailed Description

The Folic Acid Clinical Trial (FACT) was developed to conclusively determine the effect of high dose folic acid supplementation in pregnancy on the prevention of preeclampsia in a randomized controlled trial (RCT) design.

The primary objective of the FACT 4 Child study is to examine the effect of maternal folic acid supplementation in pregnancy on the risk of social impairments, as well as executive function, emotional and behavioural problems associated with Autism Spectrum Disorders (ASD) and other developmental disorders, and death in offspring aged 4-6 y of mothers recruited to the CIHR funded FACT.

The effect of folic acid supplementation throughout pregnancy may potentially have an impact on both the mother and her offspring, which highlights the importance and relevance of this study to the management of women with preeclampsia. Results of this study will allow care providers to have the evidence of potential effects of high dose folic acid that can then be discussed; allowing women to make an informed choice about their management and care.

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
664
Inclusion Criteria
  1. Capability of participant to comprehend and comply with study requirements
  2. Mother participated in FACT
Exclusion Criteria
  1. Confirmed spontaneous termination (miscarriage) or elective termination or stillborn
  2. Confirmed death of offspring at 6 weeks postpartum and/or at discharge from hospital

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Arm && Interventions
GroupInterventionDescription
Mother and child(ren)SRS 2, CBCL, BRIEF-PFACT 4 Child is the post-delivery follow-up of the offspring born to FACT mothers once these children are between the age of 4 - 6 years.
Primary Outcome Measures
NameTimeMethod
Neurocognitive disabilityFrom six weeks of age to date of data collection taken at one time point between the ages of 4 to 6 years.

The primary outcome is a competing composite endpoint of neurocognitive disability and death. Neurocognitive disability is a composite outcome related to social impairments, executive function, emotional and behavioural problems which have been associated with Autism Spectrum Disorder (ASD). It will be defined by an abnormal score on any of three standardized and validated assessment tools: SRS-2 BRIEF-P, or CBCL which will be administered to the parents of children aged 4-6 years. Deaths reported between 6 weeks to 4-6 years of age will be recorded as a competing event and treated as part of the primary endpoint.

Secondary Outcome Measures
NameTimeMethod
Severe MorbidityFrom six weeks of age to date of data collection taken at one time point between the ages of 4 to 6 years.

Secondary outcomes to be assessed in FACT 4 Child include severe morbidity of FACT offspring, captured by the Mother-Child Health Survey at the age of 4 - 6 years, including incidence of: Severe morbidity defined by any illnesses during the previous years that has necessitated hospitalization or medication/treatment for \>2 months

Trial Locations

Locations (58)

Spanishtown

🇯🇲

Kingston, Jamaica

Leighton

🇬🇧

Crewe, Cheshire, United Kingdom

North Manchester

🇬🇧

Crumpsall, United Kingdom

Lincolnshire

🇬🇧

Lincoln, Lincolnshire, United Kingdom

Oldham

🇬🇧

Oldham, United Kingdom

Rochdale

🇬🇧

Rochdale, Lancashire, United Kingdom

Darlington Memorial Hospital

🇬🇧

Darlington, County Durham, United Kingdom

Hinchingbrooke

🇬🇧

Huntingdon, Cambridgeshire, United Kingdom

Fairfield

🇬🇧

Bury, Lancashire, United Kingdom

Moncton Hospital

🇨🇦

Moncton, New Brunswick, Canada

Nepean

🇦🇺

Penrith, New South Wales, Australia

Townsville

🇦🇺

Douglas, Queensland, Australia

Ipswich

🇦🇺

Ipswich, Queensland, Australia

Royal Women's

🇦🇺

Parkville, Victoria, Australia

Edmonton Lois Hole Hospital for Women

🇨🇦

Edmonton, Alberta, Canada

Calgary Foothills Medical Center

🇨🇦

Calgary, Alberta, Canada

Sunshine

🇦🇺

St Albans, Victoria, Australia

St-Paul's Hospital

🇨🇦

Vancouver, British Columbia, Canada

Fredericton Dr. Everett Chalmers Regional Hospital

🇨🇦

Fredericton, New Brunswick, Canada

Hamilton McMaster University

🇨🇦

Hamilton, Ontario, Canada

Winnipeg University of Manitoba

🇨🇦

Winnipeg, Manitoba, Canada

Kingston

🇨🇦

Kingston, Ontario, Canada

St-Mary's Hospital

🇨🇦

Montreal, Quebec, Canada

St-John's Women's Health Centre

🇨🇦

St John's, Newfoundland and Labrador, Canada

The Ottawa Hospital, General Campus

🇨🇦

Ottawa, Ontario, Canada

Sainte-Justine

🇨🇦

Montreal, Quebec, Canada

The Ottawa Hospital, Civic Campus

🇨🇦

Ottawa, Ontario, Canada

Quebec City (CHUL) Centre Hospitalier Universitaire

🇨🇦

Montreal, Quebec, Canada

Sunnybrook Health Sciences

🇨🇦

Toronto, Ontario, Canada

London

🇨🇦

London, Ontario, Canada

St-Luc

🇨🇦

Montreal, Quebec, Canada

Regina Qu'Appelle Health Region

🇨🇦

Regina, Saskatchewan, Canada

University of West Indies

🇯🇲

Kingston 7, Jamaica

Jubilee

🇯🇲

Kingston, Jamaica

Wansbeck General Hospital

🇬🇧

Ashington, Northumberland, United Kingdom

West Middlesex University Hospital

🇬🇧

Isleworth, Middlesex, United Kingdom

St George's Hospital

🇬🇧

London, Tooting, United Kingdom

Gateshead Queen Elizabeth Hospital

🇬🇧

Gateshead, Tyne And Wear, United Kingdom

South Tyneside Distrcit Hospital

🇬🇧

South Shields, Tyne And Wear, United Kingdom

Burnley

🇬🇧

Burnley, United Kingdom

Cumberland Infirmary Carlisle

🇬🇧

Carlisle, United Kingdom

Blackburn

🇬🇧

Blackburn, United Kingdom

North Tees Hospital

🇬🇧

Stockton, United Kingdom

Guy's and St. Thomas

🇬🇧

London, United Kingdom

North Durham

🇬🇧

Durham, United Kingdom

South Tees Hospital

🇬🇧

Middlesbrough, United Kingdom

Newcastle upon Tyne Hospitals

🇬🇧

Newcastle upon Tyne, United Kingdom

North Tyneside General Hospital

🇬🇧

North Shields, United Kingdom

Norfolk & Norwich

🇬🇧

Norwich, United Kingdom

Nottingham City Hospital

🇬🇧

Nottingham, United Kingdom

Nottingham Queens Medical Centre

🇬🇧

Nottingham, United Kingdom

Sunderland Royal Hospital

🇬🇧

Sunderland, United Kingdom

Hillingdon Hospital

🇬🇧

Uxbridge, United Kingdom

Warrington Hospital

🇬🇧

Warrington, United Kingdom

West Cumberland Hospital

🇬🇧

Whitehaven, United Kingdom

49 Marine Avenue

🇬🇧

Whitley Bay, United Kingdom

Royal Wolverhampton - New Cross Hospital

🇬🇧

Wolverhampton, United Kingdom

Women's and Children's Hospital

🇦🇺

Adelaide, South Australia, Australia

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