A scientific study to assess the effectiveness of nurse-led counselling on parents of children with Congenital Adrenal Hyperplasia
Not yet recruiting
- Conditions
- healthy
- Registration Number
- CTRI/2021/07/034784
- Lead Sponsor
- Poonam Verma
- Brief Summary
It is a pre-experimental (one group pre-test post-test design). nurse-led intervention will be planned in the form of a booklet to provide knowledge to the parents about the disease, its inheritance pattern, possible treatment options and prevention. psycho-social issues, knowledge, practices and treatment adherence will be assessed by different tools pre-intervention and then after intervention and follow-up will be done at 1 month and 2 month.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Not Yet Recruiting
- Sex
- All
- Target Recruitment
- 50
Inclusion Criteria
parents of children upto 12 years of age with CAH attending Pediatric Endocrinology OPD PGIMER Chandigarh.
Exclusion Criteria
Parents of children having any other genetic/medical disorder.
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method to assess the effectiveness of nurse-led counselling on psychosocial problems, knowledge, practices and treatment adherence among parents of children with Congenital Adrenal Hyperplasia attending Pediatric Endocrinology OPD, APC, PGIMER, Chandigarh, 2020-22. at baseline, after intervention same day, at 4 weeks and 8 weeks
- Secondary Outcome Measures
Name Time Method To assess the baseline psychosocial problems, knowledge, practices and treatment adherence among parents of children with CAH. 2. To develop and implement a nurse led counselling for parents of children with CAH.
Trial Locations
- Locations (1)
PGIMER, Chandigarh
🇮🇳Chandigarh, CHANDIGARH, India
PGIMER, Chandigarh🇮🇳Chandigarh, CHANDIGARH, IndiaPoonam VermaPrincipal investigator9779528590poonamvermanayyar@gmail.com