NCT06617741招募中不适用
Myasthenia Gravis Foundation of America Global MG Patient Registry
Myasthenia Gravis Foundation of America1 个研究点 分布在 1 个国家目标入组 3,800 人开始时间: 2013年10月12日最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 发起方
- 入组人数
- 3,800
- 试验地点
- 1
- 主要终点
- Diagnosis of MG
研究概览
简要总结
The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are:
- How and when are people with MG diagnosed?
- What are the most common symptoms associated with MG?
- What treatments are being used to treat MG?
- What are the impacts of MG on activities of daily living, employment and quality of life?
- What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.
详细描述
This is a longitudinal, observational, patient reported registry.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •age over 18
- •positive MG diagnosis
排除标准
- •age under 18
- •misdiagnosed with MG
结局指标
主要结局
Diagnosis of MG
时间窗: At enrollment
Whether the patient has a confirmed MG diagnosis.
次要结局
未报告次要终点
研究者
研究点 (1)
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