Development and Needs Assessment and Efficiency of Smart Communication System for Patients With ALS (Part 1)
- Conditions
- Amyotrophic Lateral Sclerosis
- Registration Number
- NCT03806647
- Lead Sponsor
- Taipei Veterans General Hospital, Taiwan
- Brief Summary
The research is aimed to explore the needs of clinical patients and their caregiver,so as to provide suggestions to the designer of the communication system.
- Detailed Description
To promote and develop a smart communication system is helpful to patients with amyotrophic lateral sclerosis (ALS),especially for stage 3 and stage 4 (late stage). Through the needs assessment, the research is aimed to explore the needs of clinical patients and their caregiver,so as to provide suggestions to the designer of the communication system.
Recruitment & Eligibility
- Status
- UNKNOWN
- Sex
- All
- Target Recruitment
- 20
Inclusion Criteria
- Clinical diagnosis of ALS
- Taiwanese and used traditional Chinese(Mandarin).
- If they were older than age 20 years.
Exclusion Criteria
- Frontotemporal dementia, severe depression, or schizophrenia.
- If they cannot complete the questionnaire with researchers or family members help.
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Amyotrophic Lateral Sclerosis Supportive Care Needs (ALSSCN) 2018.10.01~2020.04.31 The ALSSCN consisted of 37 items with seven domains: physical, psychological, emotional, spiritual, social, informational, and practical needs.
- Secondary Outcome Measures
Name Time Method
Trial Locations
- Locations (1)
Taipei Veterans General Hospital
🇨🇳Taipei, TW, Taiwan