Integrated care for people living with memory problems.
- Conditions
- DementiaNeurological - Dementias
- Registration Number
- ACTRN12624000235505
- Lead Sponsor
- niversity of Newcastle
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- ot yet recruiting
- Sex
- All
- Target Recruitment
- 460
Eligibility criteria for people with dementia
People who are aged 65 or older, have a medical diagnosis of any type and stage of dementia or who have suspected dementia with a score of 82 or below on the Addenbrooke's Cognitive Examination - III (ACE - III), attend a participating health or support service, are living in the community, and have an adult carer.
Eligibility criteria for carers
Participants with dementia will be asked to nominate an informal, adult carer. This will be defined as a person who is the main source of practical and / or emotional support for the person with dementia.
Those who have a clinician-judged life expectancy of less than 12 months or who are receiving intensive and ongoing support from the Community Dementia Service will be excluded.
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Days spent in the community[Days spent in the community in the 12 months of follow up. This objective outcome will be calculated by total days (365) minus days spent in an emergency department admission, unplanned hospital admission, permanent residential aged care and days where the person was deceased. Days in hospital and/ or emergency department presentations will be obtained from local health district (hospital) records, while date of death and date of moving to permanent residential aged care will be obtained by carer report. 12 month post enrollment. ]
- Secondary Outcome Measures
Name Time Method Quality of life (QoL) (people with dementia). This will be administered via interview. [The DemQoL will be used to assess QoL among people with dementia. Baseline (enrollment), 6 months' post enrollment, 12 months post enrollment. ];Quality of life (carers) will be assessed by self administered questionnaire.[SF 12 will be used to assess carer quality of life. Baseline (at enrollment), 6 months post enrollment and 12 months post enrollment. ]