Methods to Enhance Caregivers' Knowledge of Alzheimer's Disease and Related Dementias (ADRD)
试验速览
- 阶段
- 1 期
- 状态
- 已完成
- 入组人数
- 65
- 试验地点
- 1
- 主要终点
- Delayed test performance
研究概览
简要总结
Managing daily symptoms for people with Alzheimer's Disease or Related Dementia (ADRD) can be challenging and confusing for informal caregivers who are family members or friends and not paid for their assistance. This is due, in part, to gaps in knowledge. Ensuring that informal caregivers are properly educated about ADRD symptoms and treatment guidelines is an essential first step for reducing adverse health events that people living with ADRD experience and addressing the substantial emotional and physical burden that caregivers report. The goal of is project is to improve caregiver education to support treatment adherence for ADRD with retrieval practice. This intervention incorporates principles from the science of learning for structuring retrieval practice to optimize learning and that are effective across the lifespan to compensate for gaps in knowledge and processing capabilities including learners who experience associative memory deficits due to age, their own disease state, or other factors.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Crossover
- 主要目的
- Supportive Care
- 盲法
- Single (Outcomes Assessor)
盲法说明
Participants are masked to study hypothesis. Analyses are conducted blind to condition assignment.
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •informal caregivers
- •located in the United States
- •Speak and read English
- •free of cognitive deficits that would prevent consenting and/or completing online experimental tasks
排除标准
- •formal caregivers
- •former caregivers who are not currently in a care role for a person living with dementia
- •technology issues that cause loss of data (e.g., internet connection failure)
- •not finishing the experiment
- •significant distractions during experimental tasks
- •failure to pass attention or bot checks
研究组 & 干预措施
Structured Retrieval Practice (SRP)
干预措施: Structured Retrieval Practice (Behavioral)
Standard Retrieval Practice
干预措施: Standard Retrieval Practice (Behavioral)
Self-paced Study
干预措施: Business as usual learning (Behavioral)
结局指标
主要结局
Delayed test performance
时间窗: 2 days following first session
proportion correct on the final 2-day delayed test of symptoms and treatments of ADRD. The test will be in multiple-choice format.
Immediate test performance
时间窗: at the end of the first session; 10 minutes post-intervention
proportion correct on the immediate (approx. 10 min retention interval) test of symptoms and treatments of ADRD. The test will be in multiple-choice format.
次要结局
- caregiver self-efficacy(2 days following intervention (i.e., session 2 measure))
- E-Health Literacy(2 days following intervention (i.e., session 2 measure))
- Letter and pattern comparison(2 days following intervention (i.e., session 2 measure))
- Raven's progressive matrices(immediately following the intervention)
- Vocabulary(2 days following intervention (i.e., session 2 measure))
- Medical health knowledge(2 days following intervention (i.e., session 2 measure))
- Performance during learning(Baseline)
- Symptom presence, severity, and frequency(2 days following intervention (i.e., session 2 measure))
- Usability measures(Baseline)
- Demographic characteristics(Baseline and 2 days following baseline)
- self-reported subjective health information(Baseline)
研究者
Uma Tauber
Professor of Psychology
Texas Christian University