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Use of Crohn's Disease Exclusion Diet on Top of Standard Therapy Versus Standard Therapy Alone in Unstable Pediatric Crohn's Disease Patients.

Phase 3
Recruiting
Conditions
Crohn's Disease
Registration Number
NCT04777656
Lead Sponsor
Assistance Publique - Hôpitaux de Paris
Brief Summary

This research is a multicenter French randomized and single blinded phase III clinical trial evaluating two treatment strategies among Crohn's disease (CD) patients. The main objective is to assess if the addition of Crohn's Disease Exclusion Diet (CDED) to ongoing standard medication is superior to reduce the rate of relapses over 12 months compared to standard medication alone in children/adolescents with unstable CD responding with remission after a 2-months course of CDED

Detailed Description

Crohn's disease is a recurrent inflammatory disorder. Current treatment strategies aim reducing intestinal (and systemic) inflammation based on the use of Immunomodulators (IM) and biologics (B). However, some patients, particularly in the pediatric age group do not respond with remission to standard therapy and approximately 30% of patients lose response to efficient therapy. There is a clear unmet need for new treatment strategies. In addition, patients and families have a high degree of reluctance to use IM/B as life-long medication, particularly due to potential side effects including cancer, lymphomas, serious infections or drug-related immune diseases. This is of particular importance for children/adolescents with CD, potentially exposed over many decades to various IM/B. Experimental and epidemiological data indicate that the western life style and particularly modern food play a key role in the development of CD, probably via alteration of the intestinal barrier function and/or enforcing the intestinal dysbiosis. Based on these data and the observation that exclusive enteral nutrition is highly efficacious in inducing remission in active CD, nutritional therapies are more and more in the focus for the development of new treatment approaches.

The main objective is to assess if the addition of CDED to ongoing standard medication is superior to reduce the rate of relapses over 12 months compared to standard medication alone in children/adolescents with unstable CD responding with remission after a 2-months course of CDED.

To achieve this objective, eligible patients with active CD will participate to this study for a 13 months period. After a screening period, the patients will have a 2 months run-in phase where they will follow the CDED protocol, but continue their maintenance therapy, with the exception of corticosteroid that have to be tapered and stopped at the end of the 2 months.

Then, the patients responding to CDED during run-in will be randomized at M2 to one of the two treatment arms (CDED/Modulen™IBD® or Unrestricted food access) and will have 4 follow-up visits (M4, M6, M9 and M12)

Recruitment & Eligibility

Status
RECRUITING
Sex
All
Target Recruitment
120
Inclusion Criteria
  • Child/Adolescent aged 6-17 years with a confirmed diagnosis of CD (for at least 3 months) with an active disease (defined as: wPCDAI >12.5 or CRP > 2 times upper limit or calprotectin levels >250µg/g if available) despite anti-inflammatory (5-ASA and derivates), corticosteroids, immunomodulator (thiopurines or methotrexate) and/or biologic therapy (anti-TNF, anti-integrin anti-IL23 antibodies)
  • For girls of childbearing age: a negative pregnancy test, and use of an effective method of contraception (abstinence, oral contraceptives, intra-uterine device, diaphragm with spermicide and condom)
  • Patient willing to comply with daily intake of an exclusion diet
  • Informed and signed consent of parents
  • Patient affiliated to social security (or health insurance)
Exclusion Criteria
  • Active perianal fistulizing disease
  • Internal fistula or evidence of un-drained and un-controlled abscess/phlegmon
  • Patient who require CD-related surgical therapy
  • Patient with known allergy to cow milk's proteins
  • Patient incapable to follow CDED for a prolonged period
  • Pregnancy, breastfeeding
  • Patient already included in an interventional study

Study & Design

Study Type
INTERVENTIONAL
Study Design
PARALLEL
Primary Outcome Measures
NameTimeMethod
Relapse from randomization until M1212 months

Relapse is defined as weighted Paediatric Crohn's disease activity index (wPCDAI) \>40 points and/or CRP \>2 times over upper limit (in the absence of any obvious infections sign) or if at two consecutive visits (within 2-8 weeks) the wPCDAI is \>12,5 but less 40 and/or CRP \>1,5 but less 2 times over upper limit (in the absence of any obvious infections sign) or if the patient required additional CD-specific medication/surgery in the interval.

Secondary Outcome Measures
NameTimeMethod
Change of fecal calprotectin values from baseline to M22 months
Physician global assessment (PGA) from baseline to M22 months

Crohn's Disease activity assessed as remission - weak - moderate - severe

Mucosal healing at M22 months

absence of any ulcerations (including aphthae)

Clinical remissionAt 4 months, 6 months, 9 months and 12 months

Defined as wPCDAI ≤12.5 and normal CRP (≤1.5 fold upper normal range)

RelapseAt 4 months, 6 months, 9 months and 12 months

Defined as wPCDAI \>40 points and/or CRP \>2 times over upper limit (in the absence of any obvious infections sign) or if at two consecutive visits (within 2-8 weeks) the wPCDAI is \>12,5 but less 40 and/or CRP \>1,5 but less 2 times over upper limit (in the absence of any obvious infections sign) or if the patient required additional CD-specific medication/surgery in the interval

Mucosal Healing at M1212 months

Absence of any ulcerations (including aphthae)

CDED compliance rate at M1212 months
Change of wPCDAI from baseline to M22 months
CDED compliance rate at M22 months
Change of quality of life IMPACT-3 from inclusion until 12 monthsAt baseline, 2 months, 4 months, 6 months, 9 months, 12 months

IMPACT-3 questionnaire of 35 closed questions - scale ranging from 1 to 5 for all answers - higher score suggesting better quality of life

CDED tolerance rate at M22 months

serious and non serious adverse events

Physician global assessment (PGA)At 4 months, 6 months, 9 months and 12 months

Crohn's Disease activity assessed as remission - weak - moderate - severe

Clinical remission at M22 months

Defined as wPCDAI ≤12.5 and normal CRP (≤1.5 fold upper normal range)

Deep remission at M22 months

Defined as wPCDAI ≤12.5 and normal CRP within normal lab range) and normal fecal calprotectin ((\<250µg/g)

Endoscopic response at M22 months

Decrease of Crohn's Disease Endoscopic Index Score (CDEIS) ≥ 50% from baseline

Change of MRI from baseline to M22 months

Simplified Magnetic Resonance Index of Activity (MARIA) for Crohn's Disease score from baseline to M2

Change of intestinal microbiome composition from baseline to M22 months
Endoscopic response at M1212 months

Decrease of Crohn's Disease Endoscopic Index Score (CDEIS) ≥ 50% from baseline

Change of MRI from M2 to M1212 months

Simplified Magnetic Resonance Index of Activity (MARIA) for Crohn's Disease score from M2 to M12

CDED tolerance rate at M1212 months

Serious and non serious adverse events

Deep remissionAt 4 months, 6 months, 9 months and 12 months

Defined as wPCDAI ≤12.5 and normal CRP (within normal lab range) and normal fecal calprotectin (\<250µg/g)

Change of Intestinal microbiome compositionAt 4 months, 6 months, 9 months, 12 months

Trial Locations

Locations (4)

CHU Caen Normandie - Service de Gastroentérologie pédiatrique

🇫🇷

Caen, France

Hôpital de la Timone, AP-HM - Service de Gastroentérologie pédiatrique

🇫🇷

Marseille, France

Hôpital Necker-Enfants malades - Service de Gastroentérologie pédiatrique

🇫🇷

Paris, France

Hôpital Femme mère enfant, CHU Lyon - Service Hépato-gastroentérologie et Nutrition pédiatrique

🇫🇷

Bron, France

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