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Prognostic Factors , Morbidity and Mortality in Patients With Neuromuscular Disorders Admitted in ICU

Conditions
Muscular Dystrophies
Intensive Care (ICU) Myopathy
Registration Number
NCT02685215
Lead Sponsor
Centre d'Investigation Clinique et Technologique 805
Brief Summary

Muscular dystrophies are neuromuscular disorders with disability. Restrictive pulmonary failure and cardiomyopathy affect prognosis.The investigators aim to establish predictive factors for mortality and morbidity in Intensive care unit (ICU ) and to describe the long term follow up after ICU discharge.

Detailed Description

Muscular dystrophies are neuromuscular disorders with disability. Restrictive pulmonary failure and cardiomyopathy affect prognosis. Little is known about morbidity and mortality of patients with muscular dystrophies admitted in intensive care unit (ICU).The investigators aim to describe the spectrum of patients with muscular dystrophies admitted in ICU , to establish predictive factors for ICU mortality and morbidity and to describe the long term follow up after ICU discharge.

Recruitment & Eligibility

Status
UNKNOWN
Sex
All
Target Recruitment
800
Inclusion Criteria
  • admitted in ICU
  • Duchenne muscular dystrophy
  • Becker muscular dystrophy
  • LGMD
  • Steinert disease
  • Pompe disease
  • FSHD
  • metabolic disease
  • mitochondrial disease
  • congenital myopathy
  • others neuro-muscular diseases
Exclusion Criteria
  • brain injury
  • minor patient

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
ICU mortality1 month
Secondary Outcome Measures
NameTimeMethod
tracheostomy in ICU1 month
decline of vital capacity after ICU stay2 years
long term survival after ICU stay5 years
predictive factors for re admission in ICU1 year

Trial Locations

Locations (1)

Hopital Raymond Poincare

🇫🇷

Garches, France

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