Attempts to CONTrol the END of life in people with dementia - Work Package 1.

eiden University Medical Center, Leiden, The Netherlands0 个研究点目标入组 900 人开始时间: 待定最近更新: 2024年2月28日

适应症

试验速览

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•The person with dementia:
•has a diagnosis of irreversible dementia established by a physician
•has been informed about and is aware of his or her diagnosis
•has a family caregiver (spouse, friend, partner, daughter/son, etc.) who is willing to participate in the study
•has decision making capacity and is able to communicate through sufficient memory and language
•has sufficient capacity of the local or English language to participate in the interview
•is able to understand and sign the consent form
•has adequate vision and hearing (can be achieved by using corrective lenses and hearing aid if required)
•consents to participate.
•The family caregiver:
•is willing and able to participate in the study
•the person with dementia they care for is willing and able to participate
•is at least 18 years old
•has sufficient capacity of the local or English language to participate in the interview
•consents to participate.
•The physician:
•practices a specialty that includes provision of end-of-life care for individuals living with dementia (depending on the country, the specialty could be primary care physicians such as general practitioners and elderly care physicians, geriatricians, geriatric psychiatrist, neurologists)
•is willing and able to participate in the study
•consents to participate.

•The person with dementia is currently affected by a severe psychiatric disorder (e.g., major depression, schizophrenia, substance abuse, PTSD) as diagnosed by a psychiatrist, psychologist, or physician.
•The person is expected to die in a few weeks.

发起方

eiden University Medical Center, Leiden, The Netherlands