Attempts to CONTrol the END of life in people with dementia - Work Package 2

eiden University Medical Center, Leiden, the Netherlands0 个研究点目标入组 279 人开始时间: 待定最近更新: 2024年2月28日

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•We aim to include 45 general practitioners from different practices. Each general practitioner is invited to bring a practice nurse to receive the training and participate in delivering the intervention. The targeted total sample size is 279 persons with dementia and their family caregivers.
•Inclusion criteria for GPs:
•GPs who are willing to contact persons with dementia and their family caregivers from their practice in the Netherlands for study participation and who are willing to complete training and study requirements to conduct ACP conversations with persons with dementia and their family caregivers if randomized to an intervention group.
•Inclusion criteria for persons with dementia:
•diagnosis of irreversible dementia established by a physician;
•decisional capacity and the person can be interviewed (adequate memory, speech and language, and ability to make decisions);
•living at home;
•sufficient capacity of the Dutch language;
•adequate vision and hearing (can be achieved by using corrective lenses or hearing aid);
•the family caregiver is also willing to participate in the study.
•Inclusion criteria for family caregivers of persons with dementia:
•at least 18 years old;
•sufficient capacity of the Dutch language;
•decisional capacity;
•adequate vision and hearing (can be achieved by using corrective lenses or hearing aid);
•the person with dementia is also willing to participate in the study.

•Exclusion criteria for GPs:
•GPs with no persons with dementia in their practice;
•GPs who plan to resign within one year.
•Exclusion criteria for persons with dementia:
•currently affected by a severe psychiatric disorder (e.g., major depression, schizophrenia, substance abuse, PTSD) as diagnosed by a psychiatrist, psychologist, or physician;
•a life expectancy of less than four weeks;
•severe aphasia or another language disorder.
•Exclusion criteria for family caregivers of persons with dementia:
•currently affected by a severe psychiatric disorder (e.g. major depression, schizophrenia, substance abuse, PTSD) as diagnosed by a psychiatrist, psychologist, or physician, if known to the GP of the person with dementia;
•a life expectancy of less than four weeks if known to the GP of the person with dementia;
•severe aphasia or another language disorder if known to the GP of the person with dementia.

发起方

eiden University Medical Center, Leiden, the Netherlands