Schools and Young People with Sickle Cell Disease (SCD) in Nigeria
Not Applicable
Recruiting
- Conditions
- Haematological DisordersSickle Cell Disease
- Registration Number
- PACTR201609001789310
- Lead Sponsor
- De Montfort University
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 400
Inclusion Criteria
1. Ages: 5-18 living with sickle cell disease (sickle cell anaemia; haemoglobin SC disease, sickle beta-thalassaemia or other forms of sickle cell disease, but not sickle cell trait [haemoglobin AS])
2. Attending the outpatient sickle cell clinics at Lagos State University College of Medicine and/or the Lagos sickle cell support clubs,
3. Assent (with parental consent), or (aged 16+) who consent, to take part.
Exclusion Criteria
Those on inpatient admissions
Those who are too sick to participate in the study
Those who do not consent or assent to the study
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method composite score out of ten based on the ten test items (some score 1 point for a yes, some score 1 point for a no depending upon whether the item in question represents a support to good health or a threat to good health)
- Secondary Outcome Measures
Name Time Method umber of days off school