ISRCTN15892454
Active, not recruiting
未知
End of life care for infants, children and young people: a mixed-methods evaluation of current practice in the UK
niversity of York0 sites4,377 target enrollmentFebruary 10, 2021
Overview
- Phase
- 未知
- Intervention
- Not specified
- Conditions
- End-of-life care for infants, children and young people with life-limiting conditions
- Sponsor
- niversity of York
- Enrollment
- 4377
- Status
- Active, not recruiting
- Last Updated
- last year
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Current exclusion criteria as of 04/03/2024:
- •WS1: The researchers intend to recruit all clinical leads of children’s cancer services, NNUs and PICUs, and all Chairs of paediatric palliative care networks.
- •1\. Parents whose child has died at least 3 months prior to contact and no more than 3 years prior to contact
- •2\. Healthcare professionals working in a children's cancer service, PICU or NNU
- •WS3 Part 1: All children and TYAs with cancer in England who died between 2012\-2020\.
- •WS3 Part 2: Parents of Infants and children who received treatment in either a NICU or PICU and who have died in the last 5 years.
- •Previous inclusion criteria:
- •WS1: The researchers intend to recruit all clinical leads of children’s cancer services, NNUs and PICUs, and all Chairs of paediatric palliative care networks.
- •1\. Parents whose child has died at least 3 months prior to contact and no more than 3 years prior to contact
- •2\. Healthcare professionals working in a children's cancer service, PICU or NNU
Exclusion Criteria
- •Current exclusion criteria as of 04/03/2024:
- •WS2: Parents whose child died less than 3 months ago or more than 3 years ago (at the time of recruitment)
- •WS3 Part 1: The researchers intend to use data of all children and TYAs who died in NHS cancer treatment centres 2012\-2018
- •WS3 Part 2: Parents not able to give informed consent or under the age of 16\. Parents in cases where there are safeguarding issues.
- •Previous exclusion criteria:
- •WS2: Parents whose child died less than 3 months ago or more than 3 years ago (at the time of recruitment)
- •WS3 Part 1: The researchers intend to use data of all children and TYAs who died in NHS cancer treatment centres 2012\-2018
- •WS3 Part 2: Children not identified as being at high risk of death
Outcomes
Primary Outcomes
Not specified
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