ISRCTN41288313
Active, not recruiting
未知
Supporting the complete care of children and young people with life-threatening or life-shortening conditions, and their families: a mixed-method study of pastoral, spiritual and religious needs and support, and the role of chaplaincy services
niversity of York0 sites540 target enrollmentSeptember 10, 2020
Overview
- Phase
- 未知
- Intervention
- Not specified
- Conditions
- Children and young people, and their parents, diagnosed with a life-shortening or life-threatening condition
- Sponsor
- niversity of York
- Enrollment
- 540
- Status
- Active, not recruiting
- Last Updated
- 5 years ago
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •1\. Work package 1:
- •1\.1\. Head/service lead of chaplaincy services of an acute NHS Trust or children's hospices in England, or, in case of children's hospice where no in\-house chaplaincy service, the head of care
- •2\. Work package 2:
- •2\.1\. Salaried chaplains and chaplaincy volunteers based in chaplaincy services participating in the study. Services will be purposefully selected to represent both different organisational settings (such as children’s NHS Trusts, children’s hospitals, general acute services, and hospices) and faiths/religions represented in the local population.
- •3\. Work package 3\. Comprises three sub\-samples:
- •3\.1\. Sub\-sample A:
- •3\.1\.1\. Aged 10 to 18 years
- •3\.1\.2\. Diagnosed with: relapsed cancer or cancer with \=75% survival rate; a degenerative neuromuscular condition with evidence of significant deterioration in the past 12 months; or kidney failure
- •3\.1\.3\. Aware of (potentially) life\-limiting nature of condition
- •3\.1\.4\. Not at end\-stage/dying
Exclusion Criteria
- •Does not meet inclusion criteria
Outcomes
Primary Outcomes
Not specified
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