ISRCTN41288313进行中（未招募）未知
Supporting the complete care of children and young people with life-threatening or life-shortening conditions, and their families: a mixed-method study of pastoral, spiritual and religious needs and support, and the role of chaplaincy services
niversity of York0 个研究点目标入组 540 人开始时间: 2020年9月10日最近更新:
适应症
试验速览
- 阶段
- 未知
- 状态
- 进行中（未招募）
- 发起方
- 入组人数
- 540
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 性别
- All
入选标准
- •1. Work package 1:
- •1.1. Head/service lead of chaplaincy services of an acute NHS Trust or children's hospices in England, or, in case of children's hospice where no in-house chaplaincy service, the head of care
- •2. Work package 2:
- •2.1. Salaried chaplains and chaplaincy volunteers based in chaplaincy services participating in the study. Services will be purposefully selected to represent both different organisational settings (such as children’s NHS Trusts, children’s hospitals, general acute services, and hospices) and faiths/religions represented in the local population.
- •3. Work package 3. Comprises three sub-samples:
- •3.1. Sub-sample A:
- •3.1.1. Aged 10 to 18 years
- •3.1.2. Diagnosed with: relapsed cancer or cancer with =75% survival rate; a degenerative neuromuscular condition with evidence of significant deterioration in the past 12 months; or kidney failure
- •3.1.3. Aware of (potentially) life-limiting nature of condition
- •3.1.4. Not at end-stage/dying
- •3.1.5. No significant cognitive impairment
- •3.1.6. Parents of children aged 0 to 18 years and with the characteristics listed in 3.1.2. to 3.1.4.
- •3.2. Sub-sample B:
- •3.2.1. Aged 12 to 24 years
- •3.2.2. Diagnosed with cancer when aged between 5 and 17 years
- •3.2.3. Transferred to long-term follow-up within the past 1 year
- •3.2.4. Within 10 years of the end of treatment
- •3.2.5. No significant cognitive impairment
- •3.3. Sub-sample C:
- •3.3.1. Bereaved parents
- •3.3.2. Child's cause of death was a life-threatening or life-shortening condition or associated complications
- •3.3.3. Child died aged 0 to 18 years
- •3.3.4. Child died =3 months ago and =2 years ago
- •4. Work package 4:
- •4.1. Member of specialist paediatric clinical teams (oncology, renal, neurology, and paediatric and neonatal intensive care) or children's hospice care/bereavement team. Purposive sampling ensures representation of relevant professions (medical, nursing, and allied health), as well as post/role (inpatient, community/outreach, and clinic/outpatient), duration of experience, and faith/beliefs within the recruited sample.
排除标准
- •Does not meet inclusion criteria
研究者
相似试验
招募中
不适用
Cross-sector care for children and adolescents with mentally ill and addicted parents – Children of mentally ill parents –network – CHIMPS-NETF10-F19F20-F29F30-F39F40-F48F50-F59F60-F69Mental and behavioural disorders due to psychoactive substance useSchizophrenia, schizotypal and delusional disordersMood [affective] disordersNeurotic, stress-related and somatoform disordersBehavioural syndromes associated with physiological disturbances and physical factorsDisorders of adult personality and behaviourDRKS00020380niversitätsklinikum Hamburg-Eppendorf Klinik für Kinder- und Jugendpsychiatrie, -psychotherapie und -psychosomatik858
招募中
Unknown
Efficacy of the SMILESup mobile health intervention on oral health literacy and early childhood dental caries.Dental CariesACTRN12623000325606Western Sydney Local Health District150
进行中（未招募）
不适用
End of life care for infants, children and young peopleEnd-of-life care for infants, children and young people with life-limiting conditionsISRCTN15892454niversity of York4,377
已完成
不适用
Implementing Routinecare for Children and Adolescents with ADHD According to the Guidelines – Barriers and EffectsF90Hyperkinetic disordersDRKS00013489niklinik Köln, Psychiatrie, Psychosomatik und Psychotherapie des Kindes- und Jugendalters, Ausbildungsinstitut für Kinder- und Jugendlichenpsychotherapie (AKIP)228
尚未招募
不适用
Improving the health of children and adolescents with autoinflammatory diseasesDRKS00032447Deutsches Rheuma-Foschungszentrum Berlin250