COPD Patient-Powered Research Network

Recruiting

• Conditions: Chronic Bronchitis; Chronic Obstructive Pulmonary Disorder; Chronic Obstructive Lung Disease; Emphysema

• Registration Number: NCT02803242
• Lead Sponsor: COPD Foundation

Brief Summary

The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.

Detailed Description

Not available

Study Timeline

• Study Start: 2014-08
• Study First Submitted: 2016-06-14
• Study First Submitted QC: 2016-06-14
• Study First Posted: 2016-06-16
• Status Verified: 2022-03
• Last Update Submitted: 2022-03-08
• Last Update Posted: 2022-03-10
• Primary Completion: 2025-01
• Study Completion: 2030-01

Recruitment & Eligibility

• Status: RECRUITING
• Sex: All
• Target Recruitment: 75000

Inclusion Criteria

• 18 years or older that says yes to one of the following:
• COPD diagnosis
• Current or former smoker
• Family history of respiratory disease
• Symptomatic of respiratory disease

Exclusion Criteria

• Non-English speaking

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Patient Reported Outcome Measurement Information System-29 (PROMIS-29)	15 years
Modified Medical Research Council (MMRC) Dyspnea Scale	15 years
Charlson Comorbidity Index (CCI)	15 years
COPD Assessment Test (CAT)	15 years

Trial Locations

Locations (1)

COPD Foundation; 🇺🇸 Washington, District of Columbia, United States