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Determining the Needs of Aging People With Disabilities

Not Applicable
Completed
Conditions
Mental Handicap
Aging
Disabled People
Registration Number
NCT02735005
Lead Sponsor
Centre Hospitalier Annecy Genevois
Brief Summary

Heterogeneous modalities of aging lead to describe three categories of elderly patients: 1-healthy without frailty, 2- healthy with frailty, 3- patients with chronic disease(s) and frailty. Frail people have a high risk of losing functional independence and as a consequence they require more help for day to day life. It is known in elderly that physical activities, nutrition, social environment are important to maintain functional independence.

For patients with disabilities, less is known about the occurence of dependance with aging. That is of growing importance because life expectancy of disabled patients has increased a lot during last decades, and because caregivers, often parents, also become elderly and frail.

So the investigators will require tools to anticipate prevention and supportive needs for this specific population.

The goal of this study is to evaluate if the participants (disabled patients over 40 years old) of a well-defined region in the south-east of France (400000 inhabitants), and to assess their needs, using the Functional Autonomy Measurement System (SMAF) developed for assessment of the elderly, by Rejean Hebert \& Nicole Dubuc's team in Sherbrooke University (Quebec/Canada).

Detailed Description

Not available

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
741
Inclusion Criteria
  • adult 40 years or older

  • must need help allocated by government social health services (Committee on Rights and Autonomy of Disabled People = french CDAPH)

  • must live

    1. either in dedicated units or specialized homes (french medicalized care homes, or dedicated community homes)
    2. or at home but working in specialized dedicated centers (So called french Etablissement et Service d'Aide par le Travail) or requiring intervention of specialized services (Support Service for Social Life or Medical-Social Support Service for Disabled Adults)
Exclusion Criteria
  • patient or patient's legal guardian opposed to participate

Study & Design

Study Type
INTERVENTIONAL
Study Design
SINGLE_GROUP
Primary Outcome Measures
NameTimeMethod
Needs in supports for aging disabled patientsthrough study completion, an average of 1 year

classification into one of the fourteen homogenous profiles of the Fonctional Autonomy Measurement System (SMAF) tool. The SMAF tool is a software based on responses of 29 predefined items on incapacities (with 4 modalities of response for each) and care and ressources used by interviewed people. The social SMAF tool adds 6 supplementary items (also with 4 modalities of response for each).

Predefined algorithms defined for not disabled elderly people leads to classification into 14 homogeneous profiles. Progression's modalities of elderly from one profile to another is well known.

The goal of this study is to determine if the same tool could be used for a younger disabled population, and if not, we want to build other algorithms dedicated to this aging disabled population. That's why this study is performed in collaboration with the Sherbrooke's team who designed the SMAF tool.

Secondary Outcome Measures
NameTimeMethod

Trial Locations

Locations (29)

FAM du Moulin

🇫🇷

Allinges, France

APF - SAVS Annecy

🇫🇷

Annecy, France

ESAT "Ateliers de Novel"

🇫🇷

Annecy, France

FAM Le Goëland

🇫🇷

Meythet, France

SAVS - Association Départementale des Infirmes Moteurs Cérébraux

🇫🇷

Annecy, France

Savs Archim'Aide

🇫🇷

Annecy, France

Savs Espoir 74-Oxygene

🇫🇷

Annecy, France

ESAT Bellegarde Industries

🇫🇷

Bellegarde, France

EHPAD Maison de Famille du Genevois

🇫🇷

Collonges sous Salève, France

ESAT Ferme de Chosal

🇫🇷

Copponex, France

Scroll for more (19 remaining)
FAM du Moulin
🇫🇷Allinges, France

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