Determining the Needs of Aging People With Disabilities
- Conditions
- Mental HandicapAgingDisabled People
- Registration Number
- NCT02735005
- Lead Sponsor
- Centre Hospitalier Annecy Genevois
- Brief Summary
Heterogeneous modalities of aging lead to describe three categories of elderly patients: 1-healthy without frailty, 2- healthy with frailty, 3- patients with chronic disease(s) and frailty. Frail people have a high risk of losing functional independence and as a consequence they require more help for day to day life. It is known in elderly that physical activities, nutrition, social environment are important to maintain functional independence.
For patients with disabilities, less is known about the occurence of dependance with aging. That is of growing importance because life expectancy of disabled patients has increased a lot during last decades, and because caregivers, often parents, also become elderly and frail.
So the investigators will require tools to anticipate prevention and supportive needs for this specific population.
The goal of this study is to evaluate if the participants (disabled patients over 40 years old) of a well-defined region in the south-east of France (400000 inhabitants), and to assess their needs, using the Functional Autonomy Measurement System (SMAF) developed for assessment of the elderly, by Rejean Hebert \& Nicole Dubuc's team in Sherbrooke University (Quebec/Canada).
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 741
-
adult 40 years or older
-
must need help allocated by government social health services (Committee on Rights and Autonomy of Disabled People = french CDAPH)
-
must live
- either in dedicated units or specialized homes (french medicalized care homes, or dedicated community homes)
- or at home but working in specialized dedicated centers (So called french Etablissement et Service d'Aide par le Travail) or requiring intervention of specialized services (Support Service for Social Life or Medical-Social Support Service for Disabled Adults)
- patient or patient's legal guardian opposed to participate
Study & Design
- Study Type
- INTERVENTIONAL
- Study Design
- SINGLE_GROUP
- Primary Outcome Measures
Name Time Method Needs in supports for aging disabled patients through study completion, an average of 1 year classification into one of the fourteen homogenous profiles of the Fonctional Autonomy Measurement System (SMAF) tool. The SMAF tool is a software based on responses of 29 predefined items on incapacities (with 4 modalities of response for each) and care and ressources used by interviewed people. The social SMAF tool adds 6 supplementary items (also with 4 modalities of response for each).
Predefined algorithms defined for not disabled elderly people leads to classification into 14 homogeneous profiles. Progression's modalities of elderly from one profile to another is well known.
The goal of this study is to determine if the same tool could be used for a younger disabled population, and if not, we want to build other algorithms dedicated to this aging disabled population. That's why this study is performed in collaboration with the Sherbrooke's team who designed the SMAF tool.
- Secondary Outcome Measures
Name Time Method
Trial Locations
- Locations (29)
FAM du Moulin
🇫🇷Allinges, France
APF - SAVS Annecy
🇫🇷Annecy, France
ESAT "Ateliers de Novel"
🇫🇷Annecy, France
FAM Le Goëland
🇫🇷Meythet, France
SAVS - Association Départementale des Infirmes Moteurs Cérébraux
🇫🇷Annecy, France
Savs Archim'Aide
🇫🇷Annecy, France
Savs Espoir 74-Oxygene
🇫🇷Annecy, France
ESAT Bellegarde Industries
🇫🇷Bellegarde, France
EHPAD Maison de Famille du Genevois
🇫🇷Collonges sous Salève, France
ESAT Ferme de Chosal
🇫🇷Copponex, France
Scroll for more (19 remaining)FAM du Moulin🇫🇷Allinges, France