ong-term follow-up in patients with congenital anatomical malformations.

Recruiting

• Conditions: anatomical birth defect; 10018018; congenital anatomical malformation; 10002112; 10010613

• Registration Number: NL-OMON30692
• Lead Sponsor: Erasmus MC, Universitair Medisch Centrum Rotterdam

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Last Update Posted: 13 May 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: Not specified
• Target Recruitment: 700

Inclusion Criteria

Patients born between 1988 and 2000 who were treated in the Sophia Children's hospital with a congenital diaphragmatic hernia, CCAML, esophageal atresia, intestinal atresia, abdominal wall defect, M. Hirschsprung, anorectal malformation and sacrococcygeal teratoma

Exclusion Criteria

Lacking parental and/or patients informed consent

Study & Design

• Study Type: Observational non invasive
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>For each diagnosis assessment of :<br /><br><br /><br>Medical problems<br /><br>Psychological functioning<br /><br>Condition, motorical abilities, strenght, mobility<br /><br>Quality of life, experience of illness<br /><br>Social and environmental functioning (school, profession)</p><br>

Secondary Outcome Measures

Name	Time	Method
<p>The amount of patients who still have complaints at the age of 18 years and<br /><br>need to be transferred to the adult health care </p><br>