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Clinical Trials/NCT06400524
NCT06400524
Recruiting
Not Applicable

Assessment of Myocardial Function, (Peripheral) Endothelial Function and Perfusion in Early and Advanced Disease Stages of Hypertrophic Cardiomyopathy

Amsterdam UMC, location VUmc1 site in 1 country100 target enrollmentMay 2024

Overview

Phase
Not Applicable
Intervention
Not specified
Conditions
Hypertrophic Cardiomyopathy
Sponsor
Amsterdam UMC, location VUmc
Enrollment
100
Locations
1
Primary Endpoint
myocardial blood flow
Status
Recruiting
Last Updated
last year

Overview

Brief Summary

Hypertrophic cardiomyopathy (HCM) is a genetic disorder characterized by asymmetric hypertrophy of the heart in absence of loading conditions like hypertension. The genetic mutation underlying HCM sets in motion a cascade of functional and metabolic changes ultimately leading to disease. HCM patients often have microvascular dysfunction and myocardial perfusion deficits, of which the aetiology has not been elucidated. Whether these changes are secondary to remodelling or primarily caused by endothelial dysfunction is unclear. As the pathomechanism of HCM is thought to be a cascade of changes, it is important to gain more insight in the perfusion and endothelial function changes throughout different stages of disease: no phenotype, mild phenotype, and advanced HCM phenotype. In this study we aim to investigate these changes in the two most common genetic mutations.

Registry
clinicaltrials.gov
Start Date
May 2024
End Date
May 2026
Last Updated
last year
Study Type
Observational
Sex
All

Investigators

Sponsor
Amsterdam UMC, location VUmc
Responsible Party
Principal Investigator
Principal Investigator

Tjeerd Germans

Dr.

Amsterdam UMC, location VUmc

Eligibility Criteria

Inclusion Criteria

  • One of below:
  • MYBPC3 mutation carrier
  • MYH7 mutation carrier
  • Genotype-negative first degree relative of a MYBPC3 or MYH7 mutation carrier
  • All of the following criteria:
  • For the mutation carrier group: ≥18 years old
  • For the genotype-negative group: ≥30 years old
  • MYBPC3 and MYH7 mutation carriers will be designated to one of three groups based on their maximum wall thickness, measured by echocardiography and MRI:
  • No phenotype: MWT \<12mm
  • Mild Phenotype: MWT ≥12 until \<15mm

Exclusion Criteria

  • ≥70 years old
  • Insulin-dependent diabetes mellitus
  • Pregnancy
  • Claustrophobia
  • Pacemaker/ICD
  • Renal insufficiency \<30 GFR
  • Hypertension (systolic \>140mmHg or diastolic \>90mmHg)
  • For the genotype negative group, no phenotype group, and mild phenotype group: the use of blood pressure medication (diuretics, beta-blockers, ACE-inhibitors, angiotensin II receptor blockers, calcium channel blockers, alpha blockers)
  • For the HCM phenotype group: when it is unsafe to withhold from blood pressure medication (as specified above) for two days, as assessed by their own cardiologist
  • Left ventricular outflow tract gradient \> 50mmHg

Outcomes

Primary Outcomes

myocardial blood flow

Time Frame: 1 month

assessed by PET and CMR

peripheral endothelial function

Time Frame: 1 month

assessed by EndoPAT and LASCA

Secondary Outcomes

  • Diastolic dysfunction(1 month)
  • Tissue characterization(1 month)
  • Fibrosis(1 month)

Study Sites (1)

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