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Extra energy for hearts with a genetic defect

Recruiting
Conditions
Hypertrophic Cardiomyopathy
Registration Number
NL-OMON25078
Lead Sponsor
ZonMW en de Hartstichting, Programma Translationeel Onderzoek, project 95105003
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
Recruiting
Sex
Not specified
Target Recruitment
40
Inclusion Criteria

18-65 years old
Class 5 MYH7 mutation identified by pre-symptomatic genetic screening

Exclusion Criteria

Cardiovascular disease
- Hypertrophic Cardiomyopathy (Maximal Wall Thickness >15mm)
- Wall motion disorders
Diabetes mellitus
Any absolute or relative contra-indication for MRI (i.e. metallic implants and claustrophobia)
Inability to give informed consent.
Severely impaired renal function with a GFR < 30 ml/min
Parkinson disease and related symptoms

Study & Design

Study Type
Interventional
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Myocardial energy efficiency, as measured by PET/CT and CMR
Secondary Outcome Measures
NameTimeMethod
Diastolic function measured by echocardiography, volume parameters of the heart measured by CMR, exercise capacity measured by CPET, electrophysiological properties of the heart measured by ECG
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