Developing Culturally-Tailored Information-Based Support Groups for Chinese Immigrants With Breast Cancer

Withdrawn

Interventions: Behavioral: in-person support group
Behavioral: virtual support group

Brief Summary: There are few breast cancer support groups that focus on the specific needs of Chinese women. The purpose of this study is to learn about two different ways of providing support groups to help women of Chinese descent cope with the difficulties of a diagnosis of breast cancer and its treatment. The investigators want to learn about how best to support Chinese women with breast cancer by providing two different types of groups: an in-person support group and a virtual (online/phone) support group.

Recruitment & Eligibility

Inclusion Criteria

Female
Non-US born
Resident in the US < 20 years
Of Chinese descent
Age 21 years through 80 years
Language spoken: Mandarin
Diagnosis of breast cancer within 3 months prior to recruitment

*Not required that breast cancer is the patients' first and/or only cancer diagnosis
Currently receiving cancer treatment;
Will be living continuously in the US for the next year
Has a telephone that he/she is willing to use for the study

Exclusion Criteria

Presence of cognitive impairment disorder (i.e., delirium or dementia) sufficient to preclude meaningful informed consent and/or data collection
Another household member is already enrolled.
Prior participation in a cancer support group

Arm && Interventions

Group	Intervention	Description
in-person support group	in-person support group	This is a 1 year pilot study of the feasibility of participation in both in-person and virtual information-based, culturally tailored support groups for Chinese breast cancer patients.
virtual support group	virtual support group	This is a 1 year pilot study of the feasibility of participation in both in-person and virtual information-based, culturally tailored support groups for Chinese breast cancer patients.

Primary Outcome Measures

Name	Time	Method
feasibility	1 year	To pilot and evaluate the feasibility of information-based, culturally-tailored in-person and virtual support groups for Chinese patients with breast cancer. The feasibility of participation in the in-person and virtual support groups will be measured by documenting patient accrual to the pilot study and attendance at the support groups.

Secondary Outcome Measures

Name	Time	Method
To compare the impact of participation	1 year	in the in-person versus virtual support groups on quality of life (QOL), pain, psychosocial outcomes (distress, depression, anxiety, self-efficacy in coping with cancer), and perceived social support. These outcomes will be measured through a baseline and exit Outcomes Survey.
To assess satisfaction with the support groups	1 year	All participants will complete the Brief Support Group Survey at the end of each support meeting to assess satisfaction with and to provide feedback on the usefulness of the meeting and the information presented, ease of understanding and cultural appropriateness of the information, effectiveness of the facilitator, and suggestions for change or improvement.
To assess Internet use	1 year	among support group participants. All patients approached for study participation will complete the Screening Tool, which includes questions related to Internet use. The Screening Tool will be used for all eligible patients (patients refusing to participate will still be asked to complete the screening tool).

Locations (1): Queens Cancer Center of Queens Hospital
🇺🇸
Jamaica, New York, United States

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